Overview

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Fiscal Year Start

Jan 1

Organization Type

Grantseeker

AI Summary

The SHINE SYNDROME FOUNDATION is a nonprofit organization dedicated to improving the lives of individuals with DLG4-related Synaptopathy, focusing on research, treatment development, and community support. With an operating budget of $30K and total revenue of $121.9K for the 2024 filing year, the foundation collaborates with researchers and healthcare professionals to advance medical understanding and treatment options for this rare genetic condition. The organization does not rely on a single funder for 50% or more of its revenue, ensuring a diverse funding base to support its mission. For more information, visit their website at https://www.dlg4shine.org/.

Mission Statement

Our mission is to improve the lives of individuals with DLG4-related Synaptopathy by supporting research, developing treatments and therapies, and providing a community of support. We understand the challenges that families face when dealing with this rare disease, and we are committed to making a difference. By collaborating with researchers, healthcare professionals, and other organizations, we aim to accelerate medical advances focused on the treatment of DLG4 Synaptopathy.
Revenues
$121.9K
Expenses
$30K
Net Income:
+$91.9K
Assets
$126.1K
Liabilities
N/A
Net Assets:
N/A
Operating Budget
$30K
Operating Budget by Year

Due Diligence

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Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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Total No. of Grants
2
Median grant size
$6K
Largest grant received
$11.1K
T
Tim Stuart
Board Member
M
Marie-France Gervais
Board Member
M
Melanie Queen
Board Member

Frequently Asked Questions

What is SHINE SYNDROME FOUNDATION’s budget?
In 2024, SHINE SYNDROME FOUNDATION reported an annual operating budget of around $30 thousand. More detailed financial information is available to registered users.
What causes does SHINE SYNDROME FOUNDATION support?
SHINE SYNDROME FOUNDATION supports work in Genetic conditions and birth defects.
Where does SHINE SYNDROME FOUNDATION operate?
SHINE SYNDROME FOUNDATION is headquartered in Cincinnati, OH.
Who funded SHINE SYNDROME FOUNDATION recently?
In 2024, SHINE SYNDROME FOUNDATION received grants from AMERICAN ONLINE GIVING FOUNDATION INC, ROBERT H & SUSAN F CASTELLINI FOUNDATION C/O MARCUS A HANNA TRUSTEE, and AMICA COMPANIES FOUNDATION. More information on this organization’s funders is available to registered users.
What is the largest grant SHINE SYNDROME FOUNDATION received in 2024?
The largest grant to SHINE SYNDROME FOUNDATION in 2024 exceeds $11 thousand.