CURE RARE DISEASE INC
AI Summary
CURE RARE DISEASE INC is a nonprofit organization dedicated to enabling and financing the development of life-saving genetic medicines for ultra-rare patient populations. With an operating budget of $2 million and total revenue of $4.4 million, the organization fosters collaboration between researchers, clinicians, and donors to transform the experience of those affected by ultra-rare diseases. The organization does not rely on a single funder for 50% or more of its revenue and operates globally, bringing hope to millions waiting for cures. For more information, visit CURERAREDISEASE.ORG.
Mission Statement
OUR MISSION IS TO ENABLE AND FINANCE THE DEVELOPMENT OF LIFE-SAVING GENETIC MEDICINES FOR ULTRA-RARE PATIENT POPULATIONS PREVIOUSLY DEEMED TOO RARE TO TREAT. TO REALIZE THIS, OUR UNIQUE ECOSYSTEMS FACILITATES COLLABORATION BETWEEN WORLD-RENOWNED RESEARCHERS AND CLINICIANS, POLICY EXPERTS AND OUR GENEROUS DONORS. TOGETHER, WE ARE FUNDAMENTALLY CHANGING THE ULTRA-RARE DISEASE EXPERIENCE AND BURDEN FOR MILLIONS OFPEOPLE AROUND THE WORLD WITH OUR DISCOVERIES AND METHODS - WHILE BRINGING HOPE TO PATIENTS WAITING FOR A CURE.
Cause Areas
3
Education
Muscular dystrophy
Diseases and conditions
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Explore this org's ecosystem
See similar nonprofits by cause and location, their funders, and their grants.
Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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Frequently Asked Questions
What is CURE RARE DISEASE INC’s budget?
In 2024, CURE RARE DISEASE INC reported an annual operating budget of around $2 million. More detailed financial information is available to registered users.
What causes does CURE RARE DISEASE INC support?
CURE RARE DISEASE INC supports work in Education, Muscular dystrophy, and Diseases and conditions.
Where does CURE RARE DISEASE INC operate?
CURE RARE DISEASE INC is headquartered in Woodbridge, CT.
Who funded CURE RARE DISEASE INC recently?
In 2025, CURE RARE DISEASE INC received grants from AMERICAN ONLINE GIVING FOUNDATION INC, CHARITIES AID FOUNDATION AMERICA, and MKW of TEXAS. More information on this organization’s funders is available to registered users.
What is the largest grant CURE RARE DISEASE INC received in 2024?
The largest grant to CURE RARE DISEASE INC in 2024 exceeds $458 thousand.
What is CURE RARE DISEASE INC’s reliance on government grants?
CURE RARE DISEASE INC relied on government grants for more than 35% of their total revenue in 2024.