Overview

Sign up for

Est.

2001

Latest Fiscal Year

Not available

Organization Type

Grantseeker

AI Summary

The National Fragile X Foundation, with EIN 84-0960471, is dedicated to providing unwavering support for families affected by Fragile X while relentlessly pursuing a cure. Operating with a budget of $2 million and generating total revenue of $2.1 million in 2024, the organization focuses on nursing care and health initiatives. It does not rely on a single funder for 50% or more of its revenue and can be accessed online at www.fragilex.org.

Mission Statement

TO PROVIDE UNWAVERING SUPPORT FOR EVERY FAMILY AFFECTED BY FRAGILE X WHILE RELENTLESSLY PURSUING A CURE.
Revenues
$2.1M
Expenses
$2.1M
Net Income:
+$9.4K
Assets
$3.8M
Liabilities
$1.4M
Net Assets:
+$2.5M
Operating Budget
$2M
Operating Budget by Year

Due Diligence

Are you a grantmaker?
Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
Go beyond basic verification
Instantly get 50+ financial health and governance metrics, including LUNA.
plg-image
plg-image
Go beyond basic verification
Instantly get 50+ financial health and governance metrics, including LUNA.
Total No. of Grants
17
Median grant size
$10K
Largest grant received
$96.7K
H
Hilary Rosselot
Board Member
T
Tamaro Hudson
Board Member
K
Kara Frech
Board Member

Frequently Asked Questions

What is THE NATIONAL FRAGILE X FOUNDATION’s budget?
In 2024, THE NATIONAL FRAGILE X FOUNDATION reported an annual operating budget of around $2 million. More detailed financial information is available to registered users.
What causes does THE NATIONAL FRAGILE X FOUNDATION support?
THE NATIONAL FRAGILE X FOUNDATION supports work in Nursing care and Health.
Where does THE NATIONAL FRAGILE X FOUNDATION operate?
THE NATIONAL FRAGILE X FOUNDATION is headquartered in Mclean, VA.
Who funded THE NATIONAL FRAGILE X FOUNDATION recently?
In 2025, THE NATIONAL FRAGILE X FOUNDATION received grants from AMERICAN ONLINE GIVING FOUNDATION INC, CHARITIES AID FOUNDATION AMERICA, and T ROWE PRICE PROGRAM FOR CHARITABLE GIVING INC. More information on this organization’s funders is available to registered users.
What is the largest grant THE NATIONAL FRAGILE X FOUNDATION received in 2024?
The largest grant to THE NATIONAL FRAGILE X FOUNDATION in 2024 exceeds $97 thousand.