Overview

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Est.

1993

Fiscal Year Start

Jul 1

Organization Type

Grantseeker

AI Summary

VHL Alliance Inc is a nonprofit organization dedicated to supporting efforts to cure Von-Hippel-Lindau disease and providing a support network for patients. With an operating budget of $931,000 and total revenue of $1.2 million in 2025, the organization relies on a diverse range of funding sources, with no single funder contributing 50% or more of its revenue. For more information, visit their website at www.vhl.org.

Mission Statement

TO SUPPORT EFFORTS TO CURE VON-HIPPEL-LINDAU DISEASE: TO PROVIDE A SUPPORT NETWORK FOR PATIENTS.
Revenues
$1.2M
Expenses
$1M
Net Income:
+$144.8K
Assets
$2.6M
Liabilities
$326.4K
Net Assets:
+$2.2M
Operating Budget
$931K
Operating Budget by Year

Due Diligence

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Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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Total No. of Grants
8
Median grant size
$10.5K
Largest grant received
$80K
J
John Josey
Board Member
P
Prashant Kudva
Board Member
O
Othon Iliopoulos Md PHD
Board Member

Frequently Asked Questions

What is VHL ALLIANCE INC’s budget?
In 2025, VHL ALLIANCE INC reported an annual operating budget of around $931 thousand. More detailed financial information is available to registered users.
What causes does VHL ALLIANCE INC support?
VHL ALLIANCE INC supports work in Family services and In-patient medical care.
Where does VHL ALLIANCE INC operate?
VHL ALLIANCE INC is headquartered in Boston, MA.
Who funded VHL ALLIANCE INC recently?
In 2024, VHL ALLIANCE INC received grants from BRIAN P FRIEDMAN FAMILY FOUNDATION, FIDELITY INVESTMENTS CHARITABLE GIFT FUND, and EAST TENNESSEE FOUNDATION. More information on this organization’s funders is available to registered users.
What is the largest grant VHL ALLIANCE INC received in 2024?
The largest grant to VHL ALLIANCE INC in 2024 exceeds $80 thousand.