SJOGREN'S FOUNDATION INC
Programs
Sjogren's Foundation Grant Program
THE SJOGREN'S FOUNDATION AWARDED FOUR RESEARCH GRANTS UNDER THE ANNUAL SJOGREN'S FOUNDATION GRANT PROGRAM TO UNIVERSITY AFFILIATED RESEARCHERS IN JUNE 2025. THREE PILOT GRANTS WERE AWARDED AND ONE HIGH IMPACT GRANT AWARDED. THE SJOGREN'S FOUNDATION ALSO AWARDED A DYNAMIC GRANT TO THE UNIVERSITY OF UTAH FOR DEVELOPMENT OF INTERNATIONAL CLASSIFICATION CRITERIA FOR CHILDREN WITH SJOGREN'S DISEASE. THE FOUNDATION PAID THE THIRD PAYMENT TO SUPPORT THE FOUNDATION FOR THE NIH AMP AIM RESEARCH PROJECT ON SJOGREN'S AND OTHER AUTOIMMUNE DISEASES, AND THE FIRST PAYMENT OF THE NEW FOUNDATION FOR THE NIH SJOGREN'S BIOMARKERS CONSORTIUM PROJECT TO DISCOVER NEW BIOMARKERS FOR SJOGREN'S TO AID IN IMPROVED DIAGNOSIS AND TREATMENT.THE SJOGREN'S FOUNDATION ALSO WORKED CLOSELY WITH MULTIPLE PHARMA COMPANIES TO PREPARE FOR, AND BRING, PHASE 2 AND PHASE 3 CLINICAL TRIALS FORWARD. THE FOUNDATION SUPPORTED THESE PROGRAMS BY CONFERRING WITH PHARMA ON PROTOCOLS AND PATIENT NEEDS, CERTIFYING CLINICAL TRIAL INVESTIGATORS ON PROPER USE OF ESSDAI OUTCOME MEASURES, AND ENGAGING PATIENTS TO ENCOURAGE TRIAL ENROLLMENT, IN ORDER TO HELP BRING THERAPIES TO MARKET.GeographiesNot indicatedDatesJul 1, 2024 – Jun 30, 2025Source990No causes providedNo populations provided–$1.2MConquering Sjogren's Newsletter
NEWSLETTER - THE FOUNDATION PRODUCES TWO NEWSLETTERS. "CONQUERING SJOGREN'S" IS A PATIENT FOCUSED NEWSLETTER WITH INFORMATION ABOUT SJOGREN'S AND ITS MANY MANIFESTATIONS. CS IS PRODUCED BI-MONTHLY. THE "SJOGREN'S QUARTERLY" IS A PROFESSIONAL PUBLICATION PRODUCED 4 TIMES A YEAR AND OFFERED FREE TO ALL HEALTHCARE PROFESSIONALS TO INCREASE AWARENESS AND EDUCATION AROUND SJOGREN'S.GeographiesNot indicatedDatesJul 1, 2024 – Jun 30, 2025Source990No causes providedNo populations provided–$255KSjogren's Education and Advocacy Programs
THE SJOGREN'S FOUNDATION INCREASED PATIENT SUPPORT AND EDUCATION PROGRAMS IN 2025 AS WELL AS HEALTHCARE PROVIDER EDUCATION AND AWARENESS ABOUT SJOGREN'S AND THE SYSTEMIC, MULTI-FACETED NATURE OF THE DISEASE. OF NOTE WAS THE EXPANSION OF PROVIDER OUTREACH THROUGH STATE OF SJOGREN'S AND THE FOUNDATION'S CME PROGRAM AS WELL AS PARTNERING WITH EXTERNAL CME PROGRAMS FOR SPECIALTIES AND PRIMARY CARE PROVIDERS. THE FOUNDATION ALSO INCREASED OUR ADVOCACY EFFORTS TO HIGHLIGHT THE IMPORTANCE OF CONTINUED AUTOIMMUNE DISEASE RESEARCH FUNDING, ESPECIALLY FOR SJOGREN'S AND TO HIGHLIGHT THE IMPORTANCE OF SUPPORTING THE OFFICE OF AUTOIMMUNE DISEASE RESEARCH. WE SUCCEEDED IN GETTING A NEW HOUSE RESOLUTION #245 TO AFFIRM APRIL AS SJOGREN'S AWARENESS MONTH WHICH INCLUDED MESSAGING ABOUT THE NEED FOR MORE RESEARCH AND WE HELD OUR FIRST CONGRESSIONAL BRIEFING ON SJOGREN'S. THE FOUNDATION ALSO CONTINUED OUR DIALOG WITH CENTERS FOR MEDICARE AND MEDICAID FOR DENTAL COVERAGE. WE CONTINUED TO ADVANCE OUR RELATIONSHIPS WITH CLINICIANS, RESEARCHERS, GOVERNMENT SCIENTISTS, AND CORPORATE SCIENTISTS WHO ARE INTERESTED IN SJOGREN'S. IN JUNE 2025, THE FOUNDATION WORK TO CHANGE THE DISEASE NAME FROM SJOGREN'S SYNDROME TO SJOGREN'S DISEASE WAS INTERNATIONALLY CONFIRMED BY THE PUBLICATION OF THE INITIATIVE IN A PEER-REVIEWED PUBLICATION NATURE REVIEWS RHEUMATOLOGY.GeographiesNot indicatedDatesJul 1, 2024 – Jun 30, 2025Source990No causes providedNo populations provided–$1.2M
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