Programs

  • Program 1 [2020]

    4A.LIFESHINE RESPITE: CHILD LIFE SOCIETY (CLS) PROVIDES RESPITE TRIPS AT NO COST TO CHILDREN WITH CF AND THEIR FAMILIES. WE HAVE OBSERVED THAT SENDING FAMILIES FOR RESPITE IN LOCATIONS NOT DESIGNED FOR OUR INDIVIDUALS WITH CF LED TO A VARIETY OF UNNECESSARY STRESSORS AND HEALTH RISKS FOR THE CHILDREN AND FAMILIES. CLS LAUNCHED A MULTI-YEAR CAMPAIGN TO BUILD SPECIALLY-DESIGNED FACILITIES IN WHICH FAMILIES OF CHILDREN WITH CF WOULD BE ABLE TO ENJOY SAFER, LESS STRESS RESPITE. WE HAVE SUCCESSFULLY FUNDED AND BUILT TWO (2) RESPITE HOMES TO-DATE, WITH THE GOAL OF THREE (3) MORE WITHIN TEN (10) YEARS TO MEET THE INCREASING DEMAND FOR SERVICES. IN 2017, THE TWO LIFESHINE RESPITE HOMES PROVIDED 10 THERAPEUTIC RESPITE TRIPS TO 16 CHILDREN WITH CF AND THEIR FAMILIES (69 TOTAL INDIVIDUALS) AT NO COST TO THE FAMILY. TRIPS INCLUDE AS NEEDED, GROUND TRANSPORTATION, AIRFARE, ACCOMMODATION, FOOD AND OTHER EXPENSES. REQUESTS FOR SERVICES CONTINUE TO INCREASE AND INCREASINGLY STRAIN THE CAPACITY OF THE ORGANIZATION TO RESPOND.
    Geographies
    Not indicated
    Dates
    Jan 1, 2020 – Dec 31, 2020
    Source
    990
    No causes provided
    No populations provided
    –
    $122.9K

  • Program 2 [2020]

    4B. INFORMATION, REFERRAL & SUPPORT: CHILD LIFE SOCIETY SERVED 83 CHILDREN WITH CF, 25 PARENTS WITH CF, AND 291 OF THEIR FAMILY MEMBERS IN 2017 (90 FAMILIES). BASED UPON NEEDS ASSESSMENTS, CHILD LIFE SOCIETY PROVIDED DIRECT SUPPORT AND RELIEF TO THESE FAMILIES INCLUDING ASSISTANCE OBTAINING VITAMINS, MEDICINE, MEDICAL EQUIPMENT, THERAPY, TREATMENTS AND HOUSEHOLD HELP TO ENSURE CF-SAFE HOME ENVIRONMENTS. CHILD LIFE SOCIETY CONDUCTS OUTREACH AND EDUCATION TO INCREASE AWARENESS AND UNDERSTANDING OF CF, AND TO HELP INCREASE ACCESS TO AVAILABLE SERVICES FOR FAMILIES. IN 2017, WE CONDUCTED THREE (3) EDUCATIONAL EVENTS THAT HELPED RAISE AWARENESS AND EDUCATED MORE THAN 310 INDIVIDUALS IN NEW YORK, NEW JERSEY, FLORIDA AND CANADA. CHILD LIFE SOCIETY CONDUCTED SEVEN (7) SUPPORT GROUP MEETINGS VIA FIVE CONFERENCE CALLS (150-200 INDIVIDUALS) AND TWO DINNERS (42 INDIVIDUALS).
    Geographies
    Not indicated
    Dates
    Jan 1, 2020 – Dec 31, 2020
    Source
    990
    No causes provided
    No populations provided
    –
    $8.4K

  • Lifeshine Respite Program

    4A.LIFESHINE RESPITE: CHILD LIFE SOCIETY (CLS) PROVIDES RESPITE TRIPS AT NO COST TO CHILDREN WITH CF AND THEIR FAMILIES. WE HAVE OBSERVED THAT SENDING FAMILIES FOR RESPITE IN LOCATIONS NOT DESIGNED FOR OUR INDIVIDUALS WITH CF LED TO A VARIETY OF UNNECESSARY STRESSORS AND HEALTH RISKS FOR THE CHILDREN AND FAMILIES. CLS LAUNCHED A MULTI-YEAR CAMPAIGN TO BUILD SPECIALLY-DESIGNED FACILITIES IN WHICH FAMILIES OF CHILDREN WITH CF WOULD BE ABLE TO ENJOY SAFER, LESS STRESS RESPITE. WE HAVE SUCCESSFULLY FUNDED AND BUILT TWO (2) RESPITE HOMES TO-DATE, WITH THE GOAL OF THREE (3) MORE WITHIN TEN (10) YEARS TO MEET THE INCREASING DEMAND FOR SERVICES. IN 2017, THE TWO LIFESHINE RESPITE HOMES PROVIDED 10 THERAPEUTIC RESPITE TRIPS TO 16 CHILDREN WITH CF AND THEIR FAMILIES (69 TOTAL INDIVIDUALS) AT NO COST TO THE FAMILY. TRIPS INCLUDE AS NEEDED, GROUND TRANSPORTATION, AIRFARE, ACCOMMODATION, FOOD AND OTHER EXPENSES. REQUESTS FOR SERVICES CONTINUE TO INCREASE AND INCREASINGLY STRAIN THE CAPACITY OF THE ORGANIZATION TO RESPOND.
    Geographies
    Not indicated
    Dates
    Jan 1, 2024 – Dec 31, 2024
    Source
    990
    No causes provided
    No populations provided
    –
    $294.3K