HEREDITARY NEUROPATHY FOUNDATION INC (EIN 13-4137654)

Program 1 [2021]
THE THERAPEUTIC RESEARCH IN ACCELERATED DISCOVERY (TRIAD) PROGRAM CONTINUES TO EXPAND PARTNERSHIPS WITHIN ACADEMIC UNIVERSITIES, CONTRACTED RESEARCH ORGANIZATIONS, AND WITH INDUSTRY LEADERS IN THE HEALTHCARE, BIOTECH AND PHARMACEUTICAL SECTOR TO DEVELOP THERAPIES FOR PEOPLE LIVING WITH CMT. HNF HAS ENHANCED THE PATIENT REGISTRY, GLOBAL REGISTRY FOR INHERITED NEUROPATHIES (GRIN) PROTOCOL TO COLLECT CLINICAL DATA POINTS USING AI TO MEASURE PROGRESSION AND/OR IMPROVEMENT OF PEOPLE LIVING WITH CMT. THE TRIAD COUNCIL, FORMERLY KNOWN AS THE MEDICAL AND SCIENTIFIC ADVISORY BOARD, MEETS QUARTERLY FOR UPDATES, DISCUSSIONS AND GUIDANCE ON HNF'S RESEARCH FUNDED PROGRAMS.
Geographies
Not indicated
Dates
Jul 1, 2020 – Jun 30, 2021
Source
990
No causes provided
No populations provided
–
$358.1K
Program 2 [2021]
THE MOVEMENT IS MEDICINE(MIM) PROGRAM PLAYS AN ESSENTIAL ROLE BY PROVIDING RESOURCES TO IMPROVE PHYSICAL AND MENTAL WELL BEING FOR PEOPLE LIVING WITH CMT. SINCE COVID-19, HNF EXPANDED THE ANNUAL IN-PERSON MIM SUMMIT BY INCORPORATING A 1-DAY VIRTUAL SUMMIT IN PARTNERSHIP WITH HNF CMT CENTER OF EXCELLENCE, ADVENTHEALTH. IN ADDITION, THE LAUNCH OF THE MIM FITNESS AMBASSADOR PROGRAM, PROVIDES MEMBERS FREE WEEKLY LIVE CLASSES TO HELP INCREASE PATIENTS STRENGTH, BALANCE, AND OVERALL FITNESS LEVEL. THESE CLASSES ARE SPECIFICALLY CREATED FOR THOSE WITH DISABILITIES.
Geographies
Not indicated
Dates
Jul 1, 2020 – Jun 30, 2021
Source
990
No causes provided
No populations provided
–
$271
Program 3 [2021]
THE CMT-CONNECT PROGRAM SUPPORTS EDUCATIONAL AND ENRICHED ONLINE WEBINARS ALONG WITH IN-PERSON WORKSHOPS TO SUPPORT CMT PATIENTS, FAMILIES, CAREGIVERS AND THE STAKEHOLDER COMMUNITY. THESE INTERACTIVE SERIES ARE DESIGNED TO SHED LIGHT ON OUR COMMUNITIES' MOST IMPORTANT TOPICS. WE SEEK OUT WELLNESS EXPERTS, THOUGHTLEADERS, MEDICAL PROFESSIONALS, ADAPTIVE PROGRAMS, EMERGING TECHNOLOGIES, DISABILITY ADVOCATES, UPDATES ON RESEARCH AND CLINICAL TRIALS AND MORE! THE PROGRAM ADDRESSES THE EMOTIONAL, SOCIAL, ECONOMICAL, DIVERSE AND THE PHYSICAL EFFECTS OF CMT AS IT AIMS FOR A HOLISTIC APPROACH TOWARDS SELF ADVOCACY AND WELLNESS. CURRENTLY HNF HAS HOSTED OVER 30 WEBINARS.
Geographies
Not indicated
Dates
Jul 1, 2020 – Jun 30, 2021
Source
990
No causes provided
No populations provided
–
$179K

HEREDITARY NEUROPATHY FOUNDATION INC

HEREDITARY NEUROPATHY FOUNDATION INC

HEREDITARY NEUROPATHY FOUNDATION INC

Overview

Programs

990s

Income Statement

Balance Sheet

How to Apply

Board & Team

Financial Trends

Funders

Grants Received

Giving Insights

Grantees

Grants Given

Overlap

Programs

Program 1 [2021]

Program 2 [2021]

Program 3 [2021]

Programs