Programs

  • Patient Services for Bleeding Disorders Community

    PATIENT SERVICES - MOST OF THE ASSOCIATION'S ACTIVITY IS DIRECTED TOWARD PROVIDING INFORMATION AND ASSISTANCE TO THE BLEEDING DISORDERS COMMUNITY. SOME TO SPECIFIC INDIVIDUALS AND FAMILIES BASED ON NEED. DURING 2023-2024 68.5% OF STAFF TIME-EFFORT WAS EXPENDED IN THIS SERVICE FUNCTION. INCLUDED WAS PROVIDING FINANCIAL ASSISTANCE, SPECIFIC PROBLEM RESOLUTION, COUNSELING, OUT-REFERRALS, EDUCATION, ADVOCACY, AND INFORMATIONAL AND EDUCATIONAL MATERIALS FOR PATIENTS/CLIENTS. DURING THE FISCAL YEAR 2023-2024 897 PERSONS WITH BLEEDING DISORDERS AND THEIR FAMILIES WERE SERVED. 11% OF CLIENTS RECEIVED EMERGENCY FINANCIAL ASSISTANCE OR OTHER FORMS OF SPECIFIC ASSISTANCE OR AWARDS TOTALING $76,881.05 GROUP MEETINGS WERE CONDUCTED THROUGHOUT THE YEAR. HIGHLIGHTS: TEEN RETREAT, A FAMILY EDUCATIONAL CONFERENCE, AND A MEN'S RETREAT.
    Geographies
    Not indicated
    Dates
    Jul 1, 2023 – Jun 30, 2024
    Source
    990
    No causes provided
    No populations provided
    –
    $665.9K

  • Research Support for Bleeding Disorders

    RESEARCH - THE ORGANIZATION SUPPORTS SCIENTIFIC STUDIES AND INVESTIGATIONS AT QUALIFIED INSTITUTIONS TOWARD FINDING ALLEVIATION OF THE MEDICAL PROBLEMS OF HEMOPHILIA AND OTHER BLEEDING DISORDERS AND THEIR COMPLICATIONS. DURING THE FISCAL YEAR 2023-2024 THE ASSOCIATION MAKE $118,020 IN PAYMENTS TOWARD THE $200,000 RESEARCH GRANT AWARDED IN FY 2022-2023.
    Geographies
    Not indicated
    Dates
    Jul 1, 2023 – Jun 30, 2024
    Source
    990
    No causes provided
    No populations provided
    –
    $136.8K

  • Public Health Education on Bleeding Disorders

    PUBLIC HEALTH AND ROFESSIONAL HEALH EDUCATION - IN FISCAL YEAR 2023-2024 THE ASSOCIATION SUPPORTED BLEEDING DISORDERS PROFESSIONALS IN ATTENDING NATIONAL MEETINGS. INFORMATION WAS PROVIDED TO THE GENERAL PUBLIC ON BLEEDING DISORDERS.
    Geographies
    Not indicated
    Dates
    Jul 1, 2023 – Jun 30, 2024
    Source
    990
    No causes provided
    No populations provided
    –
    $6.9K