Overview

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Est.

2000

Fiscal Year Start

Jan 1

Organization Type

Grantmaker

AI Summary

The Barth Syndrome Foundation is a 501(c)(3) grantmaking organization that focuses on supporting initiatives related to Barth syndrome. In 2024, the foundation paid a total of $235.7K in grants to 25 grantees, operating on a relationship-based, invitation-only engagement model. It does not accept unsolicited proposals; however, nonprofits interested in collaboration can explore warm-introduction pathways through Impala's Funder Prospecting.

Mission Statement

1)TO PROMOTE AWARENESS OF BARTH SYNDROME; 2) TO EDUCATE AND SUPPORT PHYSICIANS, RESEARCH CENTERS, AND ORGANIZATIONS ADDRESSING THE CAUSES, DIAGNOSIS, TREATMENTS AND CURE OF BARTH SYNDROME; AND 3) TO ASSIST IN THE SUPPORT OF THOSE SUFFERING FROM BARTH SYNDROME AND THEIR FAMILIES.
Total Funding Given
$235.7K
2024
Grantees funded
25
Multi-year grantees
52%
Funding by Year
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Evaluate your own portfolio
Understand the health of your own grantees and uncover signs of risk.
Total No. of Grants
4
Median 1st year grant
$50K
Median 2nd year grant
$50K
Top 3 Grants
Matched grants only
Grantee
Grant Size
E
Emily Milligan
Board Member
M
Mark Greene
Board Member
J
Jonathan Stokes
Board Member

Frequently Asked Questions

Can I submit an unsolicited grant proposal to THE BARTH SYNDROME FOUNDATION?
No. THE BARTH SYNDROME FOUNDATION does not accept unsolicited proposals. Funding is by invitation only.
Where does THE BARTH SYNDROME FOUNDATION give?
THE BARTH SYNDROME FOUNDATION primarily gives to organizations located in Massachusetts, New York, and Texas. These states represent the largest share of the foundation’s grantmaking by dollars awarded. Additional geographic details are available to registered users.
What size are THE BARTH SYNDROME FOUNDATION’s grants?
The largest share of grants from THE BARTH SYNDROME FOUNDATION fall in the $50 thousand to $100 thousand range. The median first-year grant is about $50 thousand. More detailed grant size data is available to registered users.
How many grants does THE BARTH SYNDROME FOUNDATION make each year?
In 2024, THE BARTH SYNDROME FOUNDATION awarded about 4 grants, totaling nearly $236 thousand. More detailed grant metrics are available to registered users.
Who did THE BARTH SYNDROME FOUNDATION fund recently?
In 2024, THE BARTH SYNDROME FOUNDATION awarded grants to about 20 grantees. Recent grantees include Children's Hospital Corporation, NEW YORK UNIVERSITY, and WASHINGTON UNIVERSITY SCHOOL OF MEDICINE HEALTH ADMINISTRATION. More detailed information on all recent recipients is available to registered users.
How do we apply to THE BARTH SYNDROME FOUNDATION?
THE BARTH SYNDROME FOUNDATION does not accept unsolicited proposals. Funding is by invitation only.