Illinois Spina Bifida Association

Programs
Skills Development and Independence Programs
Promote Skills Development and Independence: Through executive functioning coaching and vocational rehabilitation programs, ISBA helped 52 children, teens, and adults with skills, strategies, and tools needed to pursue their academic, driving, and employment goals.Since 2016, annual GoBabyGo workshops have provided custom electric ride-on cars to 102 children to empower greater mobility and independence.The Community-Clinic Connection program has worked on more than 1,425 individualized coaching and referral cases since 2017. ISBA helps people find medical care, navigate benefits, access community resources, and maintain basic needs.GeographiesNot indicatedDatesJan 1, 2023 – Dec 31, 2023Source990No causes providedNo populations provided–$77.8KOutreach and Advocacy for Spina Bifida
Support Individuals and Families Through Outreach, Education, and Advocacy: ISBA has built a statewide network of more than 1000 people living with spina bifida through community events, virtual groups, and outreach at hospital outpatient clinics.ISBA has partnerships with Shriners Children's Chicago, where ISBA is co-located, as well as with Ann & Robert H. Lurie Children's Hospital of Chicago, Loyola Medicine, The UChicago Medicine Margaret Hackett Family Program, and OSF HealthCare in Peoria.Education advocacy and legislative advocacy help ensure that people of all ages with spina bifida receive the services they need.GeographiesNot indicatedDatesJan 1, 2023 – Dec 31, 2023Source990No causes providedNo populations provided–$68.3KFinancial Assistance for Individuals
Invest in People Through Targeted Financial Assistance: ISBA provided financial assistance for medical expenses and equipment, scholarships, camp, adaptive sports, and emergency needs.GeographiesNot indicatedDatesJan 1, 2023 – Dec 31, 2023Source990No causes providedNo populations provided–$50.9K
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