Programs

  • Arts for Usher Syndrome Awareness

    TO USE THE ARTS TO CREATE EMPATHY IN ORDER TO RAISE AWARENESS AND FUNDING FOR USHER SYNDROME TO ULTIMATELY FIND A CURE.
    Geographies
    Not indicated
    Dates
    Jan 1, 2022 – Dec 31, 2022
    Source
    990
    No causes provided
    No populations provided
    –
    $327.4K

  • Program 1 [2025]

    In 2025, the Usher Syndrome Society continued its award-winning Every Second Counts campaign with a new commercial bringing total impressions to more than 500 million. The campaign returned to Times Square for a second time, featuring members of the Usher syndrome community and generating national coverage, including an ABC News segment highlighting the powerful story of a newly diagnosed family. Our awareness efforts also included a first-of-its-kind immersive exhibit in New York City attended by more than 200 guests, an event featuring a singer-songwriter sharing his experience of vision loss, and a traveling exhibit displayed in five building lobbies across Boston. Together, these initiatives helped generate the funding needed to award $763,000 for research, representing a 188% increase in research support from the prior year. The cutting edge PUSH research program funded by the Usher syndrome Society, reached major scientific milestones, with new data supporting a promising platform that may lead to treatments for certain forms of Usher syndrome.
    Geographies
    Not indicated
    Dates
    Jan 1, 2025 – Dec 31, 2025
    Source
    990
    No causes provided
    No populations provided
    –
    $892.4K