Chris Elliott Fund End Brain Cancer Initiative
Programs
Disease Education and Outreach Program
DISEASE EDUCATION/AWARENESS/OUTREACH PROGRAM: PATIENT DISEASE EDUCATION, AWARENESS AND OUTREACH OF DISEASE VIA CREATION OF EDUCATIONAL MATERIALS THAT ARE HOUSED ON OUR WEBSITE AS WELL AS PROVIDED TO THE BRAIN TUMOR COMMUNITY VIA DIGITAL AND SOCIAL MEDIA, DISEASE EDUCATIONAL ONLINE MEETINGS/EVENTS, PATIENT ROUNDTABLES, ON-ON-ONE EMAIL INTERACTIONS, IN-PERSON, ZOOM MEETINGS, FACETIME, SMALL GROUP MEETINGS, SPEAKING ENGAGEMENTS, LIVE STREAMING ON FACEBOOK, CREATION OF EDUCATIONAL VIDEOS, FACT SHEETS, CONTENT AND ARTICLES VIA LARGE SCALE DISTRIBUTION THROUGH OUR MEDIA PARTNERS. IN 2022, EBCI PROVIDED OVER 18 MILLION OPPORTUNITIES TO EDUCATE PATIENTS, CAREGIVERS, FAMILIES, INDUSTRY, AND THE GENERAL PUBLIC VIA THE ABOVE EFFORTS. IN KIND VOLUNTEER DONATIONS OF $134,587.50.GeographiesNot indicatedDatesJan 1, 2022 – Dec 31, 2022Source990No causes providedNo populations provided–$203.2KDirect Connect Patient Services
"DIRECT CONNECT" PATIENT PROGRAM & SERVICES: EBCI DIRECTLY AND PERSONALLY CONNECTS PATIENTS, CAREGIVERS & FAMILIES TO TOP BRAIN TUMOR SPECIALISTS FOR 2ND/3RD/4TH OPINIONS, SURGERY, AND TREATMENT OPTIONS AND TO PRINCIPAL INVESTIGATORS, CLINICAL TRIALS, AND TRANSLATIONAL MEDICINE. EBCI CURRENTLY HAS 7500+ TOUCH POINTS PER MONTH AND OPPORTUNITIES TO EDUCATE AND DIRECTLY SERVE OVER 900 PATIENTS, CAREGIVERS, AND FAMILIES ANNUALLY ON A ONE-ON-ONE BASIS INCLUDING CASE MANAGEMENT. IN KIND VOLUNTEER DONATIONS OF $38,587.50.GeographiesNot indicatedDatesJan 1, 2022 – Dec 31, 2022Source990No causes providedNo populations provided–$84.7KBrain Tumor Patient Advocacy Program
BRAIN TUMOR PATIENT ADVOCACY AND ACCESS PROGRAM: CONSULT ON THE CREATION OF CLINICAL TRIAL PROTOCOLS AND POLICY THAT INCORPORATES THE 'PATIENT VOICE'. WORK WITH INSURANCE COMPANIES AND MEDICARE TO INCREASE COVERAGE OF TREATMENT OPTIONS AND REIMBURSEMENT AMOUNTS FOR FDA APPROVED TREATMENTS. COLLABORATE WITH OTHER BRAIN TUMOR ORGANIZATIONS TO ADVANCE TREATMENT OPTIONS FOR BRAIN TUMORS, BRAIN CANCER, AND METASTASIZED DISEASE TO THE BRAIN COMMUNITY.GeographiesNot indicatedDatesJan 1, 2022 – Dec 31, 2022Source990No causes providedNo populations provided–$50.8K
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