Coalition For Usher Syndrome Research
AI Summary
The Coalition For Usher Syndrome Research is dedicated to raising awareness and accelerating research for Usher syndrome, the most common genetic cause of combined deafness and blindness, while providing support and information to affected individuals. With an operating budget of $436.9K and total revenue of $378.4K for the 2024 filing year, the organization relies on significant contributions from major funders, including DONOR ADVISED CHARITABLE GIVING INC and FIDELITY INVESTMENTS CHARITABLE GIFT FUND. The organization does not depend on a single funder for 50% or more of its revenue.
Mission Statement
To raise awareness and accelerate research for the most common genetic cause of combined deafness and blindness, while providing information and support to individuals with Usher syndrome.
Cause Areas
1
Patient social services
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Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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Frequently Asked Questions
What is Coalition For Usher Syndrome Research’s budget?
In 2024, Coalition For Usher Syndrome Research reported an annual operating budget of around $437 thousand. More detailed financial information is available to registered users.
What causes does Coalition For Usher Syndrome Research support?
Coalition For Usher Syndrome Research supports work in Patient social services.
Where does Coalition For Usher Syndrome Research operate?
Coalition For Usher Syndrome Research is headquartered in Westford, MA.
Who funded Coalition For Usher Syndrome Research recently?
In 2025, Coalition For Usher Syndrome Research received grants from Usher Syndrome Society Inc, COMMUNITY FOUNDATION OF NEW JERSEY, and Usher Syndrome Society Inc. More information on this organization’s funders is available to registered users.
What is the largest grant Coalition For Usher Syndrome Research received in 2024?
The largest grant to Coalition For Usher Syndrome Research in 2024 exceeds $50 thousand.