Coalition For Usher Syndrome Research

Coalition For Usher Syndrome Research

Westford, MA, US
501(c)3
EIN
26-4560897

Coalition For Usher Syndrome Research

Westford, MA, US
501(c)3
EIN
26-4560897

Overview

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Est.

2009

Fiscal Year Start

Jan 1

Organization Type

Grantseeker

AI Summary

The Coalition For Usher Syndrome Research is a nonprofit organization dedicated to raising awareness and accelerating research for Usher syndrome, the most common genetic cause of combined deafness and blindness. With an operating budget of $436.9K in 2024 and total revenue of $378.4K, the organization provides vital information and support to individuals affected by this condition. The Coalition does not rely on a single funder for 50% or more of its revenue and can be accessed online at https://www.usher-syndrome.org/.

Mission Statement

To raise awareness and accelerate research for the most common genetic cause of combined deafness and blindness, while providing information and support to individuals with Usher syndrome.
Revenues

$378.4K

Expenses

$436.9K

Net Income:
-$58.4K
Assets

$188.3K

Liabilities

$8K

Net Assets:
+$180.3K
Operating Budget

$436.9K

Operating Budget by Year

Due Diligence

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Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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Total No. of Grants

4

Median grant size
$17.5K
Largest grant received
$50K
K
Krista Vasi
Board Member
M
Margaret Kenna MD MPH
Board Member
D
David Alexander
Board Member

Frequently Asked Questions

What is Coalition For Usher Syndrome Research’s budget?
In 2024, Coalition For Usher Syndrome Research reported an annual operating budget of around $437 thousand. More detailed financial information is available to registered users.
What causes does Coalition For Usher Syndrome Research support?
Coalition For Usher Syndrome Research supports work in Patient social services.
Where does Coalition For Usher Syndrome Research operate?
Coalition For Usher Syndrome Research is headquartered in Westford, MA.
Who funded Coalition For Usher Syndrome Research recently?
In 2024, Coalition For Usher Syndrome Research received grants from COMMUNITY FOUNDATION OF NEW JERSEY, Usher Syndrome Society Inc, and DONOR ADVISED CHARITABLE GIVING INC. More information on this organization’s funders is available to registered users.
What is the largest grant Coalition For Usher Syndrome Research received in 2024?
The largest grant to Coalition For Usher Syndrome Research in 2024 exceeds $50 thousand.
Overview
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