Programs

  • Program 1 [2020]

    IN 2020, COMMUNITY CONTRIBUTIONS, LARGE GRANTS, AND A VIRTUAL FUNDRAISER PROCEEDS WERE RECEIVED AND USED TO SUPPORT AN EDUCATIONAL SUMMIT MEETING HELD IN AUGUST 2020 IN PHILADELPHIA,PENNSYLVANIA FOR PATIENTS AND LOVED ONES DEALING WITH CASTLEMAN'S DISEASE. THE PURPOSE OF THIS MEETING WAS TO PROVIDE SUPPORTIVE RESOURCES, UP TO DATE INFORMATION ABOUT THE DISEASE, CURRENT RESEARCH AND TREATMENT OPTIONS AND WAYS TO SUPPORT THE EFFORTS IN THESE AREAS. FUNDS WERE EXPENDED FOR FACILITY RENTAL, TRAVEL, LODGING, MEALS, PATIENT ENTERTAINMENT, PROMOTION, PATIENT LITERATURE AND OTHER RELATED EXPENSES.TO SUPPORT THE ONGOING RESEARCH FOR CASTLEMAN'S DISEASE CAUSE AND TREATMENT:IN 2020, CASH CONTRIBUTIONS TOTALING $312,566 WERE MADE TO THE UNIVERSITY OF PENNSYLVANIA, THE ICAHN SCOOL OF MEDICINE IN NEW YORK,THE UPLIFTING ATHELETES ORGANIZATION IN PENNSYLVANIA, ISERM DR PARIS 7 IN PARIS, FRANCE AND ELSE CARE CARENITY IN PARIS, FRANCE. THESE CASH CONTRIBUTIONS WERE MADE TO FUND FURTHER RESEARCH IN CASTLEMAN'S DISEASE. IN 2020 CASH EXPENDITURES OF $128,919 WERE MADE TO COVER CONSULTING FEES AND MAINTAIN A DATABASE FOR RESEARCH TEAMS INVOLVED IN VARIOUS AREAS OF CASTLEMAN'S DISEASE RESEARCH. THESE RESEARCH STUDIES OFFER PROMISE TO UNDERSTAND THE CASTLEMAN'S DISEASE MECHANISMS AND PROVIDE INSIGHTS FOR DEVELOPMENT OF PERSONALIZED THERAPIES.IN 2021, FURTHER COMMUNITY CONTRIBUTION SOLICITATIONS AND FUNDRAISING EVENTS ARE PLANNED SO THAT MORE MONEY IS AVAILABLE TO FURTHER FUND THE EDUCATION, RESEARCH, CAUSE AND CURE OF CASTLEMAN'S DISEASE.
    Geographies
    Not indicated
    Dates
    Jan 1, 2020 – Dec 31, 2020
    Source
    990
    No causes provided
    No populations provided
    –
    $580.5K

  • Castleman's Disease Education and Research

    IN 2023, COMMUNITY CONTRIBUTIONS AND LARGE GRANTS WERE RECEIVED AND USED TO SUPPORT AN EDUCATIONAL SUMMIT MEETING HELD IN AUGUST 2023 FOR PATIENTS AND LOVED ONES DEALING WITH CASTLEMAN'S DISEASE. THE PURPOSE OF THIS MEETING WAS TO PROVIDE SUPPORTIVE RESOURCES, UP TO DATE INFORMATION ABOUT THE DISEASE, CURRENT RESEARCH AND TREATMENT OPTIONS AND WAYS TO SUPPORT THE EFFORTS IN THESE AREAS. FUNDS WERE EXPENDED FOR PROMOTION, PATIENT LITERATURE, LODGING, TRAVEL AND OTHER RELATED EXPENSES.TO SUPPORT THE ONGOING RESEARCH FOR CASTLEMAN'S DISEASE CAUSE AND TREATMENT:IN 2023, CASH CONTRIBUTIONS TOTALING $320,099 WERE MADE TO THE UNIVERSITY OF PENNSYLVANIA, ELSE CARE CARENITY IN PARIS, FRANCE AND THE UPLIFTING ATHLETES ORGANIZATION. THESE CASH CONTRIBUTIONS WERE MADE TO FUND FURTHER RESEARCH IN CASTLEMAN'S DISEASE. IN 2023 CASH EXPENDITURES OF $475,254 WERE MADE TO COVER CONSULTING FEES, PHYSICIAN EDUCATION, PATIENT EDUCATION AND MAINTAIN A DATABASE FOR RESEARCH TEAMS INVOLVED IN VARIOUS AREAS OF CASTLEMAN'S DISEASE RESEARCH. THESE RESEARCH STUDIES OFFER PROMISE TO UNDERSTAND THE CASTLEMAN'S DISEASE MECHANISMS AND PROVIDE INSIGHTS FOR DEVELOPMENT OF PERSONALIZED THERAPIES.IN 2024, FURTHER COMMUNITY CONTRIBUTION SOLICITATIONS AND FUNDRAISING EVENTS ARE PLANNED SO THAT MORE MONEY IS AVAILABLE TO FURTHER FUND THE EDUCATION, RESEARCH, CAUSE AND CURE OF CASTLEMAN'S DISEASE.
    Geographies
    Not indicated
    Dates
    Jan 1, 2023 – Dec 31, 2023
    Source
    990
    No causes provided
    No populations provided
    –
    $795.4K