Programs

  • Program 1 [2018]

    AMERICAN AUTOIMMUNE RELATED DISEASES ASSOCIATION INC.'S EDUCATION PROGRAM FOCUSES ON PUBLIC, PATIENT, AND PHYSICIAN EDUCATION THROUGH THE SPONSORSHIP AND CO-SPONSORSHIP OF PUBLIC FORUMS ("WHAT EVERY AMERICAN NEEDS TO KNOW ABOUT AUTOIMMUNE DISEASE), PATIENT WORKSHOPS, SCIENTIFIC MEETINGS, AND SCIENTIFIC CONFERENCES. THE OBJECTIVE OF AMERICAN AUTOIMMUNE RELATED DISEASES ASSOCIATION INC.'S EDUCATIONAL PROGRAMMING IS TO IMPROVE EARLY AND CORRECT DIAGNOSIS OF ALL AUTOIMMUNE DISEASES. THE SCIENTIFIC MEETINGS PROVIDE OPPORTUNITIES FOR VALUABLE CROSS-FERTILIZATION OF RESEARCH INFORMATION. AMERICAN AUTOIMMUNE RELATED DISEASES ASSOCIATION INC. CONTINUES TO CONDUCT PUBLIC AWARENESS CAMPAIGNS AND PUBLISH PATIENT EDUCATION INFORMATION AND A QUARTERLY LAYFRIENDLY NEWSLETTER. IT SPONSORS AN AWARD-WINNING WEB SITE, MAINTAINS SOCIAL NETWORKING SITES, AND PROVIDES A 24-HOUR TOLL-FREE REQUEST LINE. THROUGH A COMMUNITY OUTREACH PROGRAM, AMERICAN AUTOIMMUNE RELATED DISEASES ASSOCIATION INC. PROVIDES FREE EDUCATIONAL BROCHURES AND NEWSLETTERS TO NUMEROUS HEALTH-CENTERED MEETINGS AND COMMUNITY SERVICES (E.G., LIBRARIES, CHURCHES, ETC.). AMERICAN AUTOIMMUNE RELATED DISEASES ASSOCIATION INC. CONTINUES TO OFFER AN EDUCATIONAL CURRICULUM TARGETING GRADE-SCHOOL-AGE CHILDREN, WITH THE OBJECTIVE OF EDUCATING THE STUDENTS AND THEIR FAMILIES ON THE "FAMILY CONNECTION" OF AUTOIMMUNE DISEASES, THUS HELPING THEM TO UNDERSTAND THAT MULTIPLE AUTOIMMUNE DISEASES CAN RUN IN FAMILIES. THIS PROGRAM IS OFFERED TO SCHOOLS AT NO CHARGE.
    Geographies
    Not indicated
    Dates
    Oct 1, 2017 – Sep 30, 2018
    Source
    990
    No causes provided
    No populations provided
    –
    $473K

  • Program 2 [2018]

    AMERICAN AUTOIMMUNE RELATED DISEASES ASSOCIATION INC. CONTINUES ITS NATIONAL FOCUS ON AUTOIMMUNE ADVOCACY AND EDUCATION THROUGH CAPITOL HILL BRIEFINGS CONCERNING ISSUES SURROUNDING PATIENT CARE, SUCH AS, ACCESS TO MEDICINES, PATIENT AND FAMILY MEASURES OF COPING WITH AUTOIMMUNE DISEASE, AND OTHER TOPICS PERTINENT TO AUTOIMMUNE DISEASE (AS MENTIONED IN PROGRAM 2). AMERICAN AUTOIMMUNE RELATED DISEASES ASSOCIATION INC. SPONSORS AUTOIMMUNE SUMMIT MEETINGS FOCUSING ON TOPICS RELATING TO AUTOIMMUNITY--FOR EXAMPLE, THE MARCH 21, 2018, MEETING DISCUSSING ADVOCACY (MORNING) AND "CANCER IMMUNOTHERAPY AND AUTOIMMUNE DISEASE" (AFTERNOON). AMERICAN AUTOIMMUNE RELATED DISEASES ASSOCIATION INC. CONTINUES TO FACILITATE THE NATIONAL COALITION OF AUTOIMMUNE PATIENT GROUPS (NCAPG), AN ORGANIZATION COMPRISED OF 38 NATIONAL AUTOIMMUNE DISEASE-SPECIFIC GROUPS WHICH COLLABORATES IN CO-SPONSORING CONGRESSIONAL BRIEFINGS AND OTHER EDUCATIONAL AND ADVOCACY PROGRAMS. ALSO FUNCTIONING AS AWARENESS, ADVOCACY, AND EDUCATION OPPORTUNITIES ARE TWO MAJOR FUNDRAISING EVENTS: THE ACROSS-THE-COUNTRY AUTOIMMUNE WALK PROGRAM, "LINKED TOGETHER FOR A CURE; AND THE ANNUAL NATIONAL FUND RAISER, "BOUND BY A COMMON THREAD."
    Geographies
    Not indicated
    Dates
    Oct 1, 2017 – Sep 30, 2018
    Source
    990
    No causes provided
    No populations provided
    –
    $429.8K

  • Program 3 [2018]

    AMERICAN AUTOIMMUNE RELATED DISEASES ASSOCIATION INC. CONTINUES SUPPORT FOR AUTOIMMUNE DISEASE RESEARCH THROUGH GRANTS FOR THE "YOUNG INVESTIGATORS" PROGRAM (AVAILABLE FOR UP TO SEVEN CAREFULLY SCREENED APPLICANTS PER YEAR) AND FOR RESEARCH AT SEVERAL MAJOR UNIVERSITIES, INCLUDING JOHNS HOPKINS, UNIVERSITY OF CALIFORNIA, FEINSTEIN INSTITUTE FOR MEDICAL RESEARCH, MASSACHUSETTS GENERAL HOSPITAL, HARVARD UNIVERSITY, AND THE NATIONAL INSTITUTES OF HEALTH. THROUGH PARTICIPATION IN THE JOHNS HOPKINS UNIVERSITY SUMMER DIVERSITY INTERNS PROGRAM, AMERICAN AUTOIMMUNE RELATED DISEASES ASSOCIATION INC. SUPPORTS THREE TO SIX MENTORED AUTOIMMUNE RESEARCH STUDENTS EACH SUMMER. AMERICAN AUTOIMMUNE RELATED DISEASES ASSOCIATION INC.'S AUTOIMMUNE REGISTRY NETWORK (ARNET) CONTINUES TO OFFER OUTSTANDING SUPPORT TO RESEARCHERS. A MAJOR GOAL WAS MET IN THE NEW COLLABORATIVE PARTNERSHIP WITH THE ALLEGHENY HEALTH NETWORK AUTOIMMUNITY INSTITUTE. KYLE MARCELLI, INTERNATIONALLY KNOWN RACE CAR DRIVER, HAS BEEN ENGAGED AS A NATIONAL AMBASSADOR TO GAIN AWARENESS FOR THIS AFFILIATION WHICH OFFERS MULTIDISCIPLINARY PATIENT CARE AND AUTOIMMUNE RESEARCH. AMERICAN AUTOIMMUNE RELATED DISEASES ASSOCIATION INC. IS CONTRIBUTING SEED FUNDS TO INITIATE A STUDY ON THE COSTS OF AUTOIMMUNE DISEASE AND THE OBTAINING OF A DIAGNOSIS.
    Geographies
    Not indicated
    Dates
    Oct 1, 2017 – Sep 30, 2018
    Source
    990
    No causes provided
    No populations provided
    –
    $356.9K