Overview

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Est.

1977

Fiscal Year Start

Jan 1

Organization Type

Grantseeker

AI Summary

The Prader-Willi Syndrome Association (USA), with EIN 41-1306908, is dedicated to enhancing the quality of life and empowering individuals affected by Prader-Willi syndrome, focusing on the area of musculoskeletal diseases. Operating with a budget of $1.6 million in 2024, the organization has generated the same amount in total revenue, supported by multiple significant funders, none of which contribute 50% or more of its revenue. More information can be found on their website at www.pwsausa.org.

Mission Statement

TO ENCHANCE THE QUALITY OF LIFE AND EMPOWER THOSE AFFECTED BY PRADER-WILLI SYNDROME
Revenues
$1.6M
Expenses
$1.6M
Net Income:
+$18.2K
Assets
$3.7M
Liabilities
$778.5K
Net Assets:
+$2.9M
Operating Budget
$1.6M
Operating Budget by Year

Due Diligence

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Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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Total No. of Grants
14
Median grant size
$12.3K
Largest grant received
$100K
T
Tim Hearn
Board Member
M
Matt McCleery
Board Member
A
Ann Scheimann
Board Member

Frequently Asked Questions

What is PRADER-WIllI SYNDROME ASSOCIATION (USA)’s budget?
In 2024, PRADER-WIllI SYNDROME ASSOCIATION (USA) reported an annual operating budget of around $1.6 million. More detailed financial information is available to registered users.
What causes does PRADER-WIllI SYNDROME ASSOCIATION (USA) support?
PRADER-WIllI SYNDROME ASSOCIATION (USA) supports work in Musculoskeletal diseases.
Where does PRADER-WIllI SYNDROME ASSOCIATION (USA) operate?
PRADER-WIllI SYNDROME ASSOCIATION (USA) is headquartered in Brandon, FL.
Who funded PRADER-WIllI SYNDROME ASSOCIATION (USA) recently?
In 2025, PRADER-WIllI SYNDROME ASSOCIATION (USA) received grants from AMERICAN ONLINE GIVING FOUNDATION INC, IRVING MAY AND EDITH H MAY FOUNDATION, and THE PITTSBURGH FOUNDATION. More information on this organization’s funders is available to registered users.
What is the largest grant PRADER-WIllI SYNDROME ASSOCIATION (USA) received in 2024?
The largest grant to PRADER-WIllI SYNDROME ASSOCIATION (USA) in 2024 exceeds $100 thousand.