Programs

  • Program 1 [2020]

    PATIENT ADVOCACY (PSA): WITH A PATIENT'S PERSPECTIVE THE CROWDCARE FOUNDATION PROVIDES PATIENT EDUCATION, MENTORING, PEER-TO-PEER ONLINE COMMUNICATION PLATFORMS AND UPDATED NEWS AND INFORMATION FOR EACH DISEASE COMMUNITY.
    Geographies
    Not indicated
    Dates
    Jan 1, 2020 – Dec 31, 2020
    Source
    990
    No causes provided
    No populations provided
    –
    $1.2M

  • Program 2 [2020]

    SUPPORT FOR CLINICAL TRIALS (SCT): THE CROWDCARE FOUNDATION RECOGNIZES THAT LITTLE-KNOWN DISEASES PROVIDE A SIGNIFICANT CHALLENGE: THERE AREN'T THAT MANY PATIENTS TO PARTICIPATE IN CLINICAL RESEARCH. THE CROWDCARE FOUNDATION AIMS TO PROMOTE CLINICAL TRIAL PARTICIPATION TO HELP ACCELERATE THE PACE OF MEDICAL RESEARCH. THE MYELOMA CROWD RADIO AND ALS CROWD RADIO SHOWS INTERVIEW TOP RESEARCHERS AND ENCOURAGE PATIENTS TO JOIN CLINICAL TRIALS IN THEIR RESPECTIVE DISEASE STATES. THESE SHOWS GIVE PATIENTS INSIGHT INTO THE LATEST RESEARCH BEING PERFORMED. ADDITIONALLY, THE MYELOMA CROWD RESEARCH INITIATIVE (MCRI) IS A CROWDSOURCED AND CROWDFUNDING RESEARCH PROJECT TO FIND AND FUND THE BEST RESEARCH FOR HIGH-RISK MYELOMA PATIENTS. THE MCRI IS NOW FUNDING THREE IMMUNOTHERAPY PROJECTS: DR. DAVID CHUNG AT THE MEMORIAL SLOAN KETTERING CANCER CENTER, DR. CESAR RODRIGUES AT WAKE FOREST UNIVERSITY, AND DR. FRANK ZHAN AT THE UNIVERSITY OF IOWA. ALS CROWD IS DEVELOPING A DATA AGGREGATE SYSTEM FOR ALS PATIENTS TO IDENTIFY KEY DRIVERS AND BIOMARKERS TO BETTER DEFINE THE DISEASE.
    Geographies
    Not indicated
    Dates
    Jan 1, 2020 – Dec 31, 2020
    Source
    990
    No causes provided
    No populations provided
    –
    $147.3K

  • Program 3 [2020]

    DATA SOLUTIONS (DS): HEALTHTREE IS A PATIENT-INITIATED, RESEARCHER VALIDATED DATA PLATFORM THAT SERVES AS A DATA RESOURCE FOR RESEARCH BUT ALSO PROVIDES BENEFITS BACK TO PATIENTS. HEALTHTREE IS A SHARED-DECISION MAKING TOOL FOR PATIENTS AND HELPS PATIENTS UNDERSTAND THEIR TREATMENT OPTIONS, FIND CLINICAL TRIALS, CONNECT WITH OTHERS WITH SIMILAR DISEASE, AND BECOME EDUCATED ON THEIR DISEASE.
    Geographies
    Not indicated
    Dates
    Jan 1, 2020 – Dec 31, 2020
    Source
    990
    No causes provided
    No populations provided
    –
    $1.6M