NOONAN SYNDROME FOUNDATION

AI Summary
The Noonan Syndrome Foundation, established with the EIN 46-1871620, is dedicated to supporting, educating, and advocating for individuals diagnosed with Noonan's Syndrome, a genetic condition linked to mutations in the RAS/MAPK pathway. With an operating budget of $142.8K and total revenue of $64K for the filing year 2024, the Foundation engages in research funding, provides resources and support through events and publications, and aims to raise public awareness for better diagnosis and understanding of the syndrome. The organization does not rely on a single funder for 50% or more of its revenue and can be found online at www.teamnoonan.org.
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Mission Statement
The mission of the Noonan Syndrome Foundation is to support, educate and advocate for those diagnosed with Noonan's Syndrome by supporting research for the development of effective treatments, and ultimately, a cure for the syndrome. Noonan's Syndrome is identified by a genetic mutation in the RAS/MAPK pathway and is expressed in many ways, over numerous systems in patients. The Noonan Syndrome Foundation supports patients and families by providing information online and in regular publications, holding regional events, conferences and support groups. Connecting patients and families to caregivers familiar with Noonan Syndrome is of the utmost importance ot the Foundation as well. Another goal is to increase public awareness of Noonan Syndrome to allow for accurate diagnosis by medical providers and to allow for those not affected by the syndrome to understand the challenges of those affected and to increase financial support
Cause Areas
2
Support groups
Health
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Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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Frequently Asked Questions
What is NOONAN SYNDROME FOUNDATION’s budget?
In 2024, NOONAN SYNDROME FOUNDATION reported an annual operating budget of around $143 thousand. More detailed financial information is available to registered users.
What causes does NOONAN SYNDROME FOUNDATION support?
NOONAN SYNDROME FOUNDATION supports work in Support groups and Health.
Where does NOONAN SYNDROME FOUNDATION operate?
NOONAN SYNDROME FOUNDATION is headquartered in Blue Springs, MO.
Who funded NOONAN SYNDROME FOUNDATION recently?
In 2024, NOONAN SYNDROME FOUNDATION received grants from EDWARD JONES FOUNDATION, AbbVie Foundation, and S&P GLOBAL FOUNDATION FKA THE MCGRAW-HILL RESEARCH FOUNDATION. More information on this organization’s funders is available to registered users.
What is the largest grant NOONAN SYNDROME FOUNDATION received in 2024?
The largest grant to NOONAN SYNDROME FOUNDATION in 2024 exceeds <$1,000.
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