Programs

  • Research and Medical Initiative

    RESEARCH AND MEDICAL:WE AIM TO GROW THE SCIENTIFIC FIELD THROUGH OUTREACH, EDUCATION AND PATIENT-DRIVEN RESEARCH SO THAT TREATMENTS, DIAGNOSIS, AND OUTCOMES CAN IMPROVE FOR PEOPLE WITH ME.
    Geographies
    Not indicated
    Dates
    Oct 1, 2023 – Sep 30, 2024
    Source
    990
    No causes provided
    No populations provided
    –
    $200.8K

  • Digital Advocacy and Awareness Program

    DIGITAL ADVOCACY AND AWARENESS:ADVOCACY IS A CORNERSTONE OF OUR WORK AT #MEACTION. EVERY YEAR, WE TAKE DECISIVE STEPS TO STRENGTHEN OUR VOICE WITH THE US GOVERNMENT THROUGH THE NATIONAL INSTITUTE OF HEALTH, THE CENTER FOR DISEASE CONTROL & PREVENTION, AND THE DEPARTMENT OF HEALTH AND HUMAN SERVICES. WE URGE EACH AGENCY TO PRIORITIZE THE HEALTH OF PEOPLE WITH ME THROUGH ACCELERATED RESEARCH, CLINICAL EDUCATION, AND A DEDICATED SEARCH FOR AN FDA-APPROVED TREATMENT. INFLUENCED BY THE HIV/AIDS MOVEMENT, OUR ADVOCACY ACTIVITIES INCLUDE PARTICIPATION IN GOVERNMENT COMMITTEES, PUBLISHED PETITIONS, OPEN LETTERS, MEETINGS, PEACEFUL PROTESTS, PRESS CONFERENCES, ADVOCACY DAYS AND MORE.
    Geographies
    Not indicated
    Dates
    Oct 1, 2023 – Sep 30, 2024
    Source
    990
    No causes provided
    No populations provided
    –
    $130.2K

  • #MillionsMissing Initiative

    #MILLIONSMISSING:#MILLIONSMISSING IS OUR GLOBAL EFFORT TO RAISE AWARENESS AND ACHIEVE RIGHTS FOR ME/CFS PATIENTS. SINCE 2016, WE HAVE BANDED TOGETHER EVERY YEAR TO RAISE AWARENESS AND ADVOCATE FOR ACTION.
    Geographies
    Not indicated
    Dates
    Oct 1, 2023 – Sep 30, 2024
    Source
    990
    No causes provided
    No populations provided
    –
    $121.5K