AI Summary
The Joubert Syndrome and Related Disorders Foundation, identified by EIN 52-1871536, is a nonprofit organization dedicated to providing an international network for parents of children with Joubert syndrome and related disorders. With an operating budget of $20.7K and total revenue of $69.2K in 2024, the foundation focuses on sharing knowledge, experience, and emotional support through resources such as a networking list, newsletter, and a biennial conference, while also educating healthcare professionals and raising public awareness. The organization does not rely on a single funder for 50% or more of its revenue and can be accessed online at JSRDF.ORG.
Mission Statement
PROVIDING AN INTERNATIONAL NETWORK OF PARENTS WHO SHARE KNOWLEDGE, EXPERIENCE, AND EMOTIONAL SUPPORT. THE FOUNDATION OFFERS A NETWORKING LIST, NEWSLETTER, AND A BIENNIAL CONFERENCE. THE JOUBERT SYNDROME & RELATED DISORDERS FOUNDATION PLAYS AN IMPORTANT ROLE IN EDUCATING PHYSICIANS AND THEIR SUPPORT TEAMS AS WELL AS INCREASING PUBLIC AWARENESS.
Cause Areas
3
Brain and nervous system disorders
Web-based media
Philanthropy
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Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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Frequently Asked Questions
What is JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION’s budget?
In 2024, JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION reported an annual operating budget of around $21 thousand. More detailed financial information is available to registered users.
What causes does JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION support?
JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION supports work in Brain and nervous system disorders, Web-based media, and Philanthropy.
Where does JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION operate?
JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION is headquartered in Lithia, FL.
Who funded JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION recently?
In 2024, JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION received grants from THE BRAVE HEART FOUNDATION INC, MAG Mutual Foundation Inc, and Paychex Charitable Foundation Inc. More information on this organization’s funders is available to registered users.
What is the largest grant JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION received in 2024?
The largest grant to JOUBERT SYNDROME AND RELATED DISORDERS FOUNDATION in 2024 exceeds $7,000.