ASSISTED PATIENTS IN FINDING MEDICAL CARE AND FACILITIES. ANSWERED QUESTIONS FROM PATIENTS AND THEIR FAMILIES REGARDING MEDICAL CARE, ARRANGED FINANCIAL AID, PROMOTED PUBLIC AWARENESS AND ACCEPTANCE OF THE FACIALLY DISFIGURED BY PUBLISHING MATERIALS ABOUT PATIENTS AND THEIR PROBLEMS. PUBLISHED NEWSLETTERS, SYNDROME BOOKLETS, AND PAPERS TO EDUCATE FAMILIES, HEALTHCARE PROVIDERS AND OTHERS REGARDING ISSUES THAT AFFECT INDIVIDUALS WITH A CRANIOFACIAL CONDITION AND THEIR FAMILIES. CONDUCTED AN ANNUAL FAMILY RETREAT AND MEDICAL SYMPOSIUM TO BRING AFFECTED INDIVIDUALS AND THEIR FAMILIES TOGETHER TO LEARN ABOUT CURRENT MEDICAL TREATMENT, AND TO SHARE SUPPORT AND RESOURCES THAT EMPOWER AND GIVE AFFECTED INDIVIDUALS AND FAMILIES HOPE.
