Overview

Sign up for

Fiscal Year Start

Jan 1

Organization Type

Grantseeker

AI Summary

The Coffin-Siris Syndrome Foundation is a nonprofit organization dedicated to supporting, connecting, and informing the Coffin-Siris Syndrome community while promoting and funding related research. With an operating budget of $105.9K and total revenue of $151.4K for the filing year 2025, the foundation is focused on addressing genetic conditions and birth defects. The organization does not rely on a single funder for 50% or more of its revenue, ensuring a diverse funding base to sustain its mission. More information can be found on their website at coffinsiris.org.

Mission Statement

Our mission is to support connect and inform the Coffin-Siris Syndrome community as well as promote and fund CSS-related research.
Revenues
$151.4K
Expenses
$119.9K
Net Income:
+$31.5K
Assets
$237.7K
Liabilities
N/A
Net Assets:
N/A
Operating Budget
$105.9K
Operating Budget by Year

Due Diligence

Are you a grantmaker?
Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
Go beyond basic verification
Instantly get 50+ financial health and governance metrics, including LUNA.
plg-image
plg-image
Go beyond basic verification
Instantly get 50+ financial health and governance metrics, including LUNA.
Total No. of Grants
3
Median grant size
$9.9K
Largest grant received
$100K
K
Kristen McGraw
Board Member
C
Carissa Robinson
Employee
G
Gaylen Mohre
Employee

Frequently Asked Questions

What is Coffin-Siris Syndrome Foundation’s budget?
In 2025, Coffin-Siris Syndrome Foundation reported an annual operating budget of around $106 thousand. More detailed financial information is available to registered users.
What causes does Coffin-Siris Syndrome Foundation support?
Coffin-Siris Syndrome Foundation supports work in Genetic conditions and birth defects.
Where does Coffin-Siris Syndrome Foundation operate?
Coffin-Siris Syndrome Foundation is headquartered in Kirkland, WA.
Who funded Coffin-Siris Syndrome Foundation recently?
In 2024, Coffin-Siris Syndrome Foundation received grants from The Bernard and Virginia Bartley Charitable Foundation, PAYPAL CHARITABLE GIVING FUND, and AMERICAN ONLINE GIVING FOUNDATION INC. More information on this organization’s funders is available to registered users.
What is the largest grant Coffin-Siris Syndrome Foundation received in 2024?
The largest grant to Coffin-Siris Syndrome Foundation in 2024 exceeds $100 thousand.