Overview

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Est.

2018

Fiscal Year Start

Jan 1

Organization Type

Grantmaker

AI Summary

The ASXL Rare Research Endowment Foundation is a 501(c)3 organization that focuses on grantmaking through a relationship-based approach, providing funding by invitation only. In 2024, the foundation awarded a total of $179.3K across four grantees. It does not accept unsolicited proposals; however, nonprofits can explore warm-introduction pathways via Impala's Funder Prospecting.

Mission Statement

A family-led organization that supports research to increase the understanding of the ASXL gene family and improve care for those living with ASXL Syndromes
Total Funding Given
$179.3K
2024
Grantees funded
4
Multi-year grantees
25%
Funding by Year
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Total No. of Grants
3
Median 1st year grant
$65K
Median 2nd year grant
$61.2K
A
Amanda Johnson
Board Member
D
Daniel Ordower
Board Member
L
Laura Badmaev
Board Member

Frequently Asked Questions

Can I submit an unsolicited grant proposal to ASXL RARE RESEARCH ENDOWMENT FOUNDATION?
No. ASXL RARE RESEARCH ENDOWMENT FOUNDATION does not accept unsolicited proposals. Funding is by invitation only.
Where does ASXL RARE RESEARCH ENDOWMENT FOUNDATION give?
ASXL RARE RESEARCH ENDOWMENT FOUNDATION primarily gives to organizations located in California, Maryland, and Texas. These states represent the largest share of the foundation’s grantmaking by dollars awarded. Additional geographic details are available to registered users.
What size are ASXL RARE RESEARCH ENDOWMENT FOUNDATION’s grants?
The largest share of grants from ASXL RARE RESEARCH ENDOWMENT FOUNDATION fall in the $100 thousand to $250 thousand range. The median first-year grant is about $65 thousand. More detailed grant size data is available to registered users.
How many grants does ASXL RARE RESEARCH ENDOWMENT FOUNDATION make each year?
In 2024, ASXL RARE RESEARCH ENDOWMENT FOUNDATION awarded about 3 grants, totaling nearly $179 thousand. More detailed grant metrics are available to registered users.
Who did ASXL RARE RESEARCH ENDOWMENT FOUNDATION fund recently?
In 2024, ASXL RARE RESEARCH ENDOWMENT FOUNDATION awarded grants to about 4 grantees. Recent grantees include REGENTS UNIVERSITY OF CALIFORNIA LOS ANGELES, KENNEDY KRIEGER CHILDREN'S HOSPITAL INC, and UCLA HEALTH SYSTEM AUXILIARY. More detailed information on all recent recipients is available to registered users.
How do we apply to ASXL RARE RESEARCH ENDOWMENT FOUNDATION?
ASXL RARE RESEARCH ENDOWMENT FOUNDATION does not accept unsolicited proposals. Funding is by invitation only.