Programs

  • Cure VCP Disease Scientific Tools Development

    Creation of Scientific and Clinical Trial Tools: Cure VCP Disease used contract researchers to create video measures and two cell models, derived from patient's blood, that will be used in the discovery of treatments for VCP disease. To date, these tools have been used to launch three projects aimed at accelerating treatment development.
    Geographies
    Not indicated
    Dates
    Jan 1, 2023 – Dec 31, 2023
    Source
    990
    No causes provided
    No populations provided
    –
    $86.9K

  • Cure VCP Disease Gene Editing Research

    Sponsorship of Research: Cure VCP Disease is collaborating to investigate the use of gene editing to correct pathogenic variants of the VCP gene. This approach could bring a treatment to 70% of known patients with VCP disease.
    Geographies
    Not indicated
    Dates
    Jan 1, 2023 – Dec 31, 2023
    Source
    990
    No causes provided
    No populations provided
    –
    $53.3K

  • Connections Conference: A VCP Family Gathering

    Connections Conference: A VCP Family Gathering - Cure VCP Disease held an educational conference with the topics of understanding the disease, mental health, assistive devices, financial planning, and community building. There were 70+ people in attendance.
    Geographies
    Not indicated
    Dates
    Jan 1, 2023 – Dec 31, 2023
    Source
    990
    No causes provided
    No populations provided
    –
    $29.9K