In 2024, The LCC Foundation advanced its mission by supporting approximately 40 families worldwide affected by Leukoencephalopathy with Brain Calcifications and Cysts (LCC/Labrune Syndrome), including 15 newly diagnosed families. The Foundation provided patient resources, educational packets, and virtual support, distributed over 200 informational materials to families and medical providers, and launched awareness campaigns that reached an estimated 50,000 people online. The organization also collaborated with researchers, participated in three national rare disease conferences, co-led a global patient registry initiative, and engaged with the FDA to ensure patient voices are represented in early research and drug development efforts.