Programs

  • Pediatric Respite Care Advocacy

    Education and Awareness: We are shifting the national conversation-so that pediatric respite care is seen as essential, not optional. Through storytelling, media, and public engagement, we spotlight the gaps and uplift the models that work to reach policymakers and which has inspired pioneers in 12 new communities to join our coalition to expand critical supportive care for medically fragile children and their families. Our Children's Respite Homes of America social media has grown to 2.6K Facebook followers, we distribute electronic newsletters on coalition progress to our database of over 1,400 engaged professionals, donors, and families, and successfully secured two journal articles published to over 10K professionals working in palliative and hospice care.
    Geographies
    Not indicated
    Dates
    Oct 1, 2023 – Sep 30, 2024
    Source
    990
    No causes provided
    No populations provided
    –
    $40.6K

  • Pediatric Palliative Care Advocacy

    Advocacy: Our Government Affairs Council advanced shaping NCPPCH's vision for a new Pediatric Palliative Care Center healthcare facility license in preparation for federal and state level stakeholder discussions. This council also finalized NCPPCH's National Policy Agenda which is now published on our website.
    Geographies
    Not indicated
    Dates
    Oct 1, 2023 – Sep 30, 2024
    Source
    990
    No causes provided
    No populations provided
    –
    $24.3K

  • Community Respite Home Development

    Community Building: We're helping local champions become local change makers by providing the tools, connections, and shared language to launch and grow respite homes across the U.S. From personalized mentorship to educational forums, we're creating a culture of readiness and momentum across the country. We host a quarterly National Advisory Council of senior leaders from across the U.S. for peer level sharing and strategic discussions. We hosted 18+ national forums, learning sessions, and collaborative conversations for all coalition team members throughout our growing 40 programs across 27 states, and provided over 104+ hours of direct mentorship and coaching which resulted in the incorporation of 4 new local community organizations in as many states.
    Geographies
    Not indicated
    Dates
    Oct 1, 2023 – Sep 30, 2024
    Source
    990
    No causes provided
    No populations provided
    –
    $16.2K