Programs

  • Pediatric Brain Cancer Advocacy and Support

    OUR MISSION IS TO RAISE AWARENESS AND FUNDING FOR CUTTING-EDGE CLINICAL RESEARCH FOR PEDIATRIC BRAIN CANCER, FOCUSING ON DIPG/DMG. WE HAVE THREE STRATEGIC PILLARS TO HELP FULFILL THIS MISSION: ADVOCACY/AWARENESS, FAMILY SUPPORT, AND CLINICAL RESEARCH. 1. ADVOCACY/AWARENESS: WE ARE CURRENTLY BUILDING OUT OUR ADVOCACY PROGRAM, BUT WE CONTINUOUSLY RAISE AWARENESS THROUGH SOCIAL MEDIA AND DIGITAL MARKETING PLATFORMS THAT ALLOW US TO REACH OUR AUDIENCE TO PROVIDE EDUCATION AND INFORMATION ABOUT PEDIATRIC BRAIN CANCER AND CHILDHOOD CANCER IN GENERAL. 2. FAMILY SUPPORT: THIS PROGRAM DID NOT YET EXIST IN 2024 AS WE JUST LAUNCHED THIS PROGRAM IN 2025, HOWEVER CURRENTLY, WE OFFER AN ONLINE APPLICATION VIA OUR WEBSITE FOR PARENTS TO FILL OUT IF THEY HAVE A CHILD WITH DIPG/DMG AND HAVE TO TRAVEL TO RECEIVE TREATMENT (EITHER RADIATION OR A CLINICAL TRIAL). WE HELP BRIDGE THE FINANCIAL GAP FOR PARENTS BY OFFERING THEM FINANCIAL ASSISTANCE FOR TRAVEL/RENT/FOOD ASSOCIATED WITH TREATMENT. 3. RESEARCH: WE ARE A VISIONARY MEMBER OF THE DIPG/DMG COLLABORATIVE. THIS IS A GROUP OF 25 FOUNDATIONS WHO JOINTLY PULL OUR ALLOCATED RESEARCH DOLLARS TOGETHER IN ORDER TO FUND MORE, BETTER AND BIGGER RESEARCH GRANTS. THIS ALSO HELPS REDUCE REDUNDANCY OF RESEARCHERS BEING FUNDED BY MULTIPLE ORGANIZATIONS FOR THE SAME GRANT. HERE IS THE WEBSITE: HTTPS://DIPGCOLLABORATIVE.ORG
    Geographies
    Not indicated
    Dates
    Jan 1, 2024 – Dec 31, 2024
    Source
    990
    No causes provided
    No populations provided
    –
    $13.1K