FIRST EDUCATES, INSPIRES, AND CONNECTS FAMILIES AND INDIVIDUALS AFFECTED BY ICHTHYOSIS AND RELATED SKIN TYPES. DURING 2019, FIRST HOSTED SEVEN PATIENT SUPPORT FORUMS WITH 159 ATTENDEES IN
Geographies
Not indicated
Dates
Oct 1, 2019 – Sep 30, 2020
Source
990
No causes provided
No populations provided
–
$470.9K
Program 2 [2020]
ONE OF THE CORNERSTONES OF FIRST'S EMPHASIS ON RESEARCH IS ITS SUPPORT OF THE YALE ICHTHYOSIS
Geographies
Not indicated
Dates
Oct 1, 2019 – Sep 30, 2020
Source
990
No causes provided
No populations provided
–
$57.3K
Support for Ichthyosis Patients
FIRST EDUCATES, INSPIRES, AND CONNECTS FAMILIES AND INDIVIDUALS AFFECTED BY ICHTHYOSIS AND RELATED SKIN TYPES. FIRST HOSTS PATIENT SUPPORT FORUMS AND ALSO PROVIDES CRITICAL INFORMATION TO ITS MEMBERS AND THE GENERAL PUBLIC THROUGH ITS WEBSITE AND CALLS TO ITS KNOWLEDGEABLE STAFF. FIRST MAINTAINS AN ACTIVE SOCIAL MEDIA PRESENCE AND FACILITATES GROUP DISCUSSIONS. FIRST PROVIDES ACCURATE, NON-BIASED INFORMATION ON THE LATEST IN RESEARCH, DIAGNOSIS, AND MANAGEMENT OF ICHTHYOSIS AND RELATED SKIN TYPES, AND CRITICAL SUPPORT TO THOSE AFFECTED WITH THESE GENETIC CONDITIONS AND THOSE THAT CARE FOR THEM.
