Overview

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Fiscal Year Start

Oct 1

Organization Type

Grantseeker

AI Summary

The CURE CDKL5 Epilepsy Foundation is a nonprofit organization dedicated to finding a cure for CDKL5 Deficiency Disorder and enhancing the quality of life for affected children and their families. With an operating budget of $14,000 and total revenue of $192,300 for the 2024 filing year, the foundation supports scientific research through financial grants to the academic and medical communities. The organization does not rely on a single funder for 50% or more of its revenue and operates with a mission focused on a rare form of epilepsy caused by mutations in the CDKL5 gene. More information can be found on their website at https://cure5.foundation/.

Mission Statement

Cure CDKL5 Epilepsy Foundation's mission is to find a cure for children suffering from CDKL5 Deficiency Disorder and improve the qualtiy of life for them and their families. We will provide financial grants and payments to advance science and research to the academic, biopharma, scientific and medical community to pursue our mission. CDKL5 is a rare developmental epileptic encephalophathy caused by mutations in the CDKL5 gene, and this can manifest in a broad range of clinical symptoms and severity.
Revenues
$192.3K
Expenses
$14K
Net Income:
+$178.3K
Assets
$178.3K
Liabilities
$0
Net Assets:
+$178.3K
Operating Budget
$14K
Operating Budget by Year

Due Diligence

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Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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Total No. of Grants
1
Median grant size
$100K
Largest grant received
$100K
A
Andreas Borg
Board Member
C
Camille Ranadive
Board Member
A
Aurelie Hasse
Board Member

Frequently Asked Questions

What is CURE CDKL5 EPILEPSY FOUNDATION’s budget?
In 2024, CURE CDKL5 EPILEPSY FOUNDATION reported an annual operating budget of around $14 thousand. More detailed financial information is available to registered users.
What causes does CURE CDKL5 EPILEPSY FOUNDATION support?
CURE CDKL5 EPILEPSY FOUNDATION supports work in Epilepsy.
Where does CURE CDKL5 EPILEPSY FOUNDATION operate?
CURE CDKL5 EPILEPSY FOUNDATION is headquartered in New York, NY.
Who funded CURE CDKL5 EPILEPSY FOUNDATION recently?
In 2025, CURE CDKL5 EPILEPSY FOUNDATION received grants from CHARITIES AID FOUNDATION AMERICA, AMERICAN ONLINE GIVING FOUNDATION INC, and THE OGUNLESI FAMILY FOUNDATION. More information on this organization’s funders is available to registered users.
What is the largest grant CURE CDKL5 EPILEPSY FOUNDATION received in 2024?
The largest grant to CURE CDKL5 EPILEPSY FOUNDATION in 2024 exceeds $100 thousand.