Overview

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Est.

1996

Fiscal Year Start

Jan 1

Organization Type

Grantmaker

AI Summary

Cystinosis Research Network Inc is a 501(c)3 grantmaking organization that focuses on funding initiatives related to cystinosis research. In 2024, the organization paid a total of $36.7K in grants to four invited grantees, emphasizing a relationship-based engagement model. It does not accept unsolicited proposals; therefore, nonprofits interested in funding opportunities are encouraged to explore warm-introduction pathways through Impala's Funder Prospecting.

Mission Statement

THE CYSTINOSIS RESEARCH NETWORK IS AN ALL VOLUNTEER, NON-PROFIT ORGANIZATION DEDICATED TO SUPPORTING AND ADVOCATING RESEARCH, PROVIDING FAMILY ASSISTANCE AND EDUCATING THE PUBLIC AND MEDICAL COMMUNITIES ABOUT CYSTINOSIS.
Total Funding Given
$36.7K
2024
Grantees funded
4
Multi-year grantees
50%
Funding by Year
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Total No. of Grants
1
Median 1st year grant
$74.6K
Median 2nd year grant
$114.6K
H
Herberth Sigler
Board Member
C
Carol Hughes
Board Member
G
Gail Potts
Board Member

Frequently Asked Questions

Can I submit an unsolicited grant proposal to CYSTINOSIS RESEARCH NETWORK INC?
No. CYSTINOSIS RESEARCH NETWORK INC does not accept unsolicited proposals. Funding is by invitation only.
Where does CYSTINOSIS RESEARCH NETWORK INC give?
CYSTINOSIS RESEARCH NETWORK INC primarily gives to organizations located in New York and California. These states represent the largest share of the foundation’s grantmaking by dollars awarded. Additional geographic details are available to registered users.
What size are CYSTINOSIS RESEARCH NETWORK INC’s grants?
The largest share of grants from CYSTINOSIS RESEARCH NETWORK INC fall in the $25 thousand to $50 thousand range. The median first-year grant is about $75 thousand. More detailed grant size data is available to registered users.
How many grants does CYSTINOSIS RESEARCH NETWORK INC make each year?
In 2024, CYSTINOSIS RESEARCH NETWORK INC awarded about 1 grants, totaling nearly $37 thousand. More detailed grant metrics are available to registered users.
Who did CYSTINOSIS RESEARCH NETWORK INC fund recently?
In 2024, CYSTINOSIS RESEARCH NETWORK INC awarded grants to about 4 grantees. Recent grantees include ALBERT EINSTEIN COLLEGE OF MEDICINE INC, REGENTS OF THE UNIVERSITY OF CALIFORNIA, and Foundation for the National Institutes of Health Inc. More detailed information on all recent recipients is available to registered users.
How do we apply to CYSTINOSIS RESEARCH NETWORK INC?
CYSTINOSIS RESEARCH NETWORK INC does not accept unsolicited proposals. Funding is by invitation only.