Overview

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Est.

1999

Latest Fiscal Year

Not available

Organization Type

Grantseeker

AI Summary

ALS THERAPY DEVELOPMENT FOUNDATION INC is a nonprofit focused on entrepreneurship, holistic medicine, and specifically named diseases research, with a mission to create and lead a transparent, collaborative ALS research process involving patients today while honoring those who have died from the disease. Based on a 2025 filing year, it operates at a significant scale with a $13.1M budget and $16.1M in total revenue, and its listed major funders include Augies Quest to Cure ALS Inc ($10.9M, 2021), MUSCULAR DYSTROPHY ASSOCIATION INC ($4.8M, 2014), and WILLIAM K BOWES JR FOUNDATION ($2M, 2024).

Mission Statement

WE ARE COMMITTED TO CREATING AND LEADING A TRANSPARENT COLLABORATIVE RESEARCH PROCESS THAT INVOLVES ALS PATIENTS TODAY AND HONORS THOSE WHOSE JOURNEY WITH THIS DISEASE HAS ENDED. WE ARE GUIDED BY PASSION, LOVE AND THE SPIRIT OF ENTREPRENEURSHIP UPON WHICH WE WERE FOUNDED.
Revenues
$13.4M
Expenses
$12.9M
Net Income:
+$527.1K
Assets
$23.1M
Liabilities
$4.4M
Net Assets:
+$18.6M
Operating Budget
$12.9M
Operating Budget by Year

Due Diligence

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Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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Total No. of Grants
79
Median grant size
$6.3K
Largest grant received
$500K
F
Fernando Vieira
Board Member
T
Tom Engellenner
Board Member
P
Paul Sallaberry
Board Member
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  • 308 funders
  • 44 board & team members
  • 12 historic 990s & financials
  • 6-year operating budget trend
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Frequently Asked Questions

What is ALS THERAPY DEVELOPMENT FOUNDATION INC D/B/A ALS THERAPY DEVELOPMENT INSTITUTE’s budget?
In 2024, ALS THERAPY DEVELOPMENT FOUNDATION INC D/B/A ALS THERAPY DEVELOPMENT INSTITUTE reported an annual operating budget of around $12.9 million. More detailed financial information is available to registered users.
What causes does ALS THERAPY DEVELOPMENT FOUNDATION INC D/B/A ALS THERAPY DEVELOPMENT INSTITUTE support?
ALS THERAPY DEVELOPMENT FOUNDATION INC D/B/A ALS THERAPY DEVELOPMENT INSTITUTE supports work in Entrepreneurship, Holistic medicine, and Specifically Named Diseases Research.
Where does ALS THERAPY DEVELOPMENT FOUNDATION INC D/B/A ALS THERAPY DEVELOPMENT INSTITUTE operate?
ALS THERAPY DEVELOPMENT FOUNDATION INC D/B/A ALS THERAPY DEVELOPMENT INSTITUTE is headquartered in Watertown, MA.
Who funded ALS THERAPY DEVELOPMENT FOUNDATION INC D/B/A ALS THERAPY DEVELOPMENT INSTITUTE recently?
In 2025, ALS THERAPY DEVELOPMENT FOUNDATION INC D/B/A ALS THERAPY DEVELOPMENT INSTITUTE received grants from HOP ON A CURE FOUNDATION INC, AMERICAN ONLINE GIVING FOUNDATION INC, and THE SMITH FAMILY FOUNDATION INC. More information on this organization’s funders is available to registered users.
What is the largest grant ALS THERAPY DEVELOPMENT FOUNDATION INC D/B/A ALS THERAPY DEVELOPMENT INSTITUTE received in 2024?
The largest grant to ALS THERAPY DEVELOPMENT FOUNDATION INC D/B/A ALS THERAPY DEVELOPMENT INSTITUTE in 2024 exceeds $500 thousand.
What is ALS THERAPY DEVELOPMENT FOUNDATION INC D/B/A ALS THERAPY DEVELOPMENT INSTITUTE’s reliance on government grants?
ALS THERAPY DEVELOPMENT FOUNDATION INC D/B/A ALS THERAPY DEVELOPMENT INSTITUTE relied on government grants for more than 5% of their total revenue in 2024.