Overview

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Est.

1986

Latest Fiscal Year

Not available

Organization Type

Grantseeker

AI Summary

HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC is a nonprofit focused on genetic conditions and birth defects, with a mission noted as “SEE SCHEDULE O.” In filing year 2025, it reported an operating budget of $7.1M and total revenue of $11.2M, and its listed top funders include THE GRIFFIN FOUNDATION INC C/O PAUL MCCOY FAMILY OFFICE SERVICES ($1.1M, 2021), LOHENGRIN FOUNDATION INC ($676K, 2024), and CHDI Foundation Inc Attn Ken Slutsky Tax Exempt Inst Grp ($657K, 2024).

Mission Statement

DEDICATED TO IMPROVING THE LIVES OF PEOPLE WITH HUNTINGTON'S DISEASE AND THEIR FAMILIES.
Revenues
$10.2M
Expenses
$11.4M
Net Income:
-$1.2M
Assets
$17.3M
Liabilities
$4.6M
Net Assets:
+$12.6M
Operating Budget
$8M
Operating Budget by Year

Due Diligence

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Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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Total No. of Grants
52
Median grant size
$10K
Largest grant received
$613.9K
R
Rebecca Chan
Board Member
J
Jonathan Klein Esq
Board Member
E
Erin Furr-Stimming Md
Board Member
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  • 195 funders
  • 64 board & team members
  • 12 historic 990s & financials
  • 6-year operating budget trend
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Frequently Asked Questions

What is HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC’s budget?
In 2024, HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC reported an annual operating budget of around $8 million. More detailed financial information is available to registered users.
What causes does HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC support?
HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC supports work in Genetic conditions and birth defects.
Where does HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC operate?
HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC is headquartered in New York, NY.
Who funded HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC recently?
In 2025, HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC received grants from AMERICAN ONLINE GIVING FOUNDATION INC, CHARITIES AID FOUNDATION AMERICA, and COMMUNITY HEALTH CHARITIES. More information on this organization’s funders is available to registered users.
What is the largest grant HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC received in 2024?
The largest grant to HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC in 2024 exceeds $614 thousand.