Logo for "HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC"

HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC

HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC

New York, NY, US
501(c)3
EIN
13-3349872
Parent Organization
Logo for "HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC"

HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC

New York, NY, US
501(c)3
EIN
13-3349872
Parent Organization

Overview

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Est.

1986

Fiscal Year Start

Jan 1

Organization Type

Grantseeker
AI Summary
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The Huntington's Disease Society of America Inc (EIN: 13-3349872) is a nonprofit organization dedicated to improving the lives of individuals affected by Huntington's disease and their families. With an operating budget of $8 million and total revenue of $10.2 million in 2024, the organization focuses on addressing genetic conditions and birth defects. It does not rely on a single funder for 50% or more of its revenue and can be found online at www.hdsa.org.

Mission Statement

DEDICATED TO IMPROVING THE LIVES OF PEOPLE WITH HUNTINGTON'S DISEASE AND THEIR FAMILIES.
Revenues

$10.2M

Expenses

$11.4M

Net Income:
-$1.2M
Assets

$17.3M

Liabilities

$4.6M

Net Assets:
+$12.6M
Operating Budget

$8M

Operating Budget by Year

Due Diligence

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Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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Total No. of Grants

52

Median grant size
$10K
Largest grant received
$613.9K
R
Rebecca Chan
Board Member
J
Jonathan Klein Esq
Board Member
E
Erin Furr-Stimming Md
Board Member

Frequently Asked Questions

What is HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC’s budget?
In 2024, HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC reported an annual operating budget of around $8 million. More detailed financial information is available to registered users.
What causes does HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC support?
HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC supports work in Genetic conditions and birth defects.
Where does HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC operate?
HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC is headquartered in New York, NY.
Who funded HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC recently?
In 2025, HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC received grants from AMERICAN ONLINE GIVING FOUNDATION INC, CHARITIES AID FOUNDATION AMERICA, and CHC CREATING HEALTHIER COMMUNITIES. More information on this organization’s funders is available to registered users.
What is the largest grant HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC received in 2024?
The largest grant to HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC in 2024 exceeds $614 thousand.
Overview
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