OSTEOGENESIS IMPERFECTA FOUNDATION
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The Osteogenesis Imperfecta Foundation, Inc. (OIF) is a Georgia-based nonprofit organization established in 1970, dedicated to improving the quality of life for individuals affected by Osteogenesis Imperfecta (OI) through research, education, awareness, and mutual support. With an operating budget of $1.8 million and total revenue of $2.3 million for the 2024 filing year, the foundation is funded by a diverse range of sources and does not rely on any single funder for 50% or more of its revenue. The organization's headquarters are located in Gaithersburg, Maryland, and it focuses on nerve, muscle, and bone diseases research, as well as dental care.
Mission Statement
OSTEOGENESIS IMPERFECTA FOUNDATION, INC. (THE FOUNDATION OR OIF) IS A GEORGIA NON-STOCK CORPORATION INCORPORATED IN 1970 WITH THE PRIMARY PURPOSE OF IMPROVING THE QUALITY OF LIFE FOR PEOPLE AFFECTED BY THE BONE DISORDER OSTEOGENESIS IMPERFECTA (OI) THROUGH RESEARCH INTO TREATMENTS AND A CURE, EDUCATION, AWARENESS, AND MUTUAL SUPPORT. THE FOUNDATION'S HEADQUARTERS ARE LOCATED IN GAITHERSBURG, MARYLAND.
Cause Areas
3
Education
Dental care
Nerve, Muscle & Bone Diseases Research
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Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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Frequently Asked Questions
What is OSTEOGENESIS IMPERFECTA FOUNDATION’s budget?
In 2024, OSTEOGENESIS IMPERFECTA FOUNDATION reported an annual operating budget of around $1.8 million. More detailed financial information is available to registered users.
What causes does OSTEOGENESIS IMPERFECTA FOUNDATION support?
OSTEOGENESIS IMPERFECTA FOUNDATION supports work in Education, Dental care, and Nerve, Muscle & Bone Diseases Research.
Where does OSTEOGENESIS IMPERFECTA FOUNDATION operate?
OSTEOGENESIS IMPERFECTA FOUNDATION is headquartered in GAITHERSBURG, MD.
Who funded OSTEOGENESIS IMPERFECTA FOUNDATION recently?
In 2025, OSTEOGENESIS IMPERFECTA FOUNDATION received grants from AMERICAN ONLINE GIVING FOUNDATION INC, RANDOLPH D ROUSE FOUNDATION INC, and DEGNA SPOLDI PRIVATE FAMILY FOUNDATION. More information on this organization’s funders is available to registered users.
What is the largest grant OSTEOGENESIS IMPERFECTA FOUNDATION received in 2024?
The largest grant to OSTEOGENESIS IMPERFECTA FOUNDATION in 2024 exceeds $315 thousand.
What is OSTEOGENESIS IMPERFECTA FOUNDATION’s reliance on government grants?
OSTEOGENESIS IMPERFECTA FOUNDATION relied on government grants for more than 15% of their total revenue in 2024.