Overview

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Est.

1970

Latest Fiscal Year

Not available

Organization Type

Grantseeker

AI Summary

OSTEOGENESIS IMPERFECTA FOUNDATION is a Georgia nonprofit founded in 1970 and headquartered in Gaithersburg, Maryland, focused on improving the quality of life for people affected by osteogenesis imperfecta through research, education, awareness, and mutual support, with additional emphasis on dental care. In filing year 2025, it reported $2.6M in total revenue and a $2.2M operating budget, with major support from RANDOLPH D ROUSE FOUNDATION INC, DEGNA SPOLDI PRIVATE FAMILY FOUNDATION, and Boston Foundation, Inc.

Mission Statement

OSTEOGENESIS IMPERFECTA FOUNDATION, INC. (THE FOUNDATION OR OIF) IS A GEORGIA NON-STOCK CORPORATION INCORPORATED IN 1970 WITH THE PRIMARY PURPOSE OF IMPROVING THE QUALITY OF LIFE FOR PEOPLE AFFECTED BY THE BONE DISORDER OSTEOGENESIS IMPERFECTA (OI) THROUGH RESEARCH INTO TREATMENTS AND A CURE, EDUCATION, AWARENESS, AND MUTUAL SUPPORT. THE FOUNDATION'S HEADQUARTERS ARE LOCATED IN GAITHERSBURG, MARYLAND.
Revenues
$2.3M
Expenses
$2.5M
Net Income:
-$179.2K
Assets
$2.1M
Liabilities
$547.5K
Net Assets:
+$1.6M
Operating Budget
$1.8M
Operating Budget by Year

Due Diligence

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Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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Total No. of Grants
17
Median grant size
$7.3K
Largest grant received
$315K
K
Karen Braitmayer
Board Member
J
James Sharples
Board Member
C
Christine Wyman Rossi
Board Member
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  • 72 funders
  • 37 board & team members
  • 9 historic 990s & financials
  • 6-year operating budget trend
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Frequently Asked Questions

What is OSTEOGENESIS IMPERFECTA FOUNDATION’s budget?
In 2024, OSTEOGENESIS IMPERFECTA FOUNDATION reported an annual operating budget of around $1.8 million. More detailed financial information is available to registered users.
What causes does OSTEOGENESIS IMPERFECTA FOUNDATION support?
OSTEOGENESIS IMPERFECTA FOUNDATION supports work in Education, Dental care, and Nerve, Muscle & Bone Diseases Research.
Where does OSTEOGENESIS IMPERFECTA FOUNDATION operate?
OSTEOGENESIS IMPERFECTA FOUNDATION is headquartered in GAITHERSBURG, MD.
Who funded OSTEOGENESIS IMPERFECTA FOUNDATION recently?
In 2025, OSTEOGENESIS IMPERFECTA FOUNDATION received grants from AMERICAN ONLINE GIVING FOUNDATION INC, HERMAN & WALTER SAMUELSON FOUNDATION INC, and RANDOLPH D ROUSE FOUNDATION INC. More information on this organization’s funders is available to registered users.
What is the largest grant OSTEOGENESIS IMPERFECTA FOUNDATION received in 2024?
The largest grant to OSTEOGENESIS IMPERFECTA FOUNDATION in 2024 exceeds $315 thousand.
What is OSTEOGENESIS IMPERFECTA FOUNDATION’s reliance on government grants?
OSTEOGENESIS IMPERFECTA FOUNDATION relied on government grants for more than 15% of their total revenue in 2024.