Overview

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Est.

2007

Latest Fiscal Year

Not available

Organization Type

Grantmaker

AI Summary

RETT SYNDROME RESEARCH TRUST INC is a 501(c)(3) grantmaker with $5.4M in total grants paid in filing year 2025 and a relationship-based, invitation-only approach. It does not accept unsolicited proposals; nonprofits can explore warm-introduction pathways via Impala’s Funder Prospecting.

Mission Statement

THE ORGANIZATION'S MISSION IS FOCUSED ON THE DEVELOPMENT OF TREATMENTS AND CURES FOR RETT SYNDROME AND RELATED MECP2 DISORDERS.
Total Funding Given
$3.9M
2024
Grantees funded
2024
N/A
Multi-year grantees (all time)
65%
Funding by Year
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Total No. of Grants
16
Median 1st year grant
$100K
Median 2nd year grant
$150.1K
M
Monica Coenraads
Board Member
A
Adrian Bird
Board Member
A
Alba Tull
Board Member
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  • 37 grantees
  • 27 board & team members
  • 12 historic 990s & financials
  • 6-year operating budget trend
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Frequently Asked Questions

Can I submit an unsolicited grant proposal to RETT SYNDROME RESEARCH TRUST INC?
No. RETT SYNDROME RESEARCH TRUST INC does not accept unsolicited proposals. Funding is by invitation only.
Where does RETT SYNDROME RESEARCH TRUST INC give?
RETT SYNDROME RESEARCH TRUST INC primarily gives to organizations located in Massachusetts, Connecticut, and Georgia. These states represent the largest share of the foundation’s grantmaking by dollars awarded. Additional geographic details are available to registered users.
What size are RETT SYNDROME RESEARCH TRUST INC’s grants?
The largest share of grants from RETT SYNDROME RESEARCH TRUST INC fall in the $100 thousand to $250 thousand range. The median first-year grant is about $100 thousand. More detailed grant size data is available to registered users.
How many grants does RETT SYNDROME RESEARCH TRUST INC make each year?
In 2024, RETT SYNDROME RESEARCH TRUST INC awarded about 20 grants, totaling nearly $3.9 million. More detailed grant metrics are available to registered users.
Who did RETT SYNDROME RESEARCH TRUST INC fund recently?
In 2024, RETT SYNDROME RESEARCH TRUST INC awarded grants to about 40 grantees. Recent grantees include Massachusetts Institute of Technology, UNIVERSITY OF MASSACHUSETTS AMHERST FOUNDATION INC, and President and Fellows of Harvard College. More detailed information on all recent recipients is available to registered users.
How do we apply to RETT SYNDROME RESEARCH TRUST INC?
RETT SYNDROME RESEARCH TRUST INC does not accept unsolicited proposals. Funding is by invitation only.