CYSTINOSIS RESEARCH FOUNDATION
AI Summary
The Cystinosis Research Foundation is a 501(c)(3) organization dedicated to funding research and initiatives related to cystinosis, having disbursed a total of $1.8 million across 14 grantees in the 2025 filing year. This funder operates on a relationship-based model and does not accept unsolicited proposals; grants are made by invitation only. Nonprofits interested in engaging with the foundation can explore warm-introduction pathways through Impala's Funder Prospecting service.
Mission Statement
Cystinosis Research Foundation's (CRF) mission is to support bench, clinical, and translational research to find better treatments and a cure for cystinosis. CRF is dedicated to funding research that will improve the quality of life for those with cystinosis and to find a cure for this devastating disease.
Cause Areas
2
Holistic medicine
Specifically Named Diseases Research
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Explore this org's ecosystem
See top causes for this funder's grantees, who else funds them, and their grants.
Grantee
Total Funding
Funding Share
REGENTS OF THE UNIVERSITY OF CALIFORNIA AT SAN DIEGO
$6.4M
36%
THE SCRIPPS RESEARCH INSTITUTE
$2.5M
14%
Massachusetts General Hospital
$1.1M
6%
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Total No. of Grants
7
Median 1st year grant
$240.6K
Median 2nd year grant
$164.8K
Top 3 Grants
Matched grants only
Grantee
Grant Size
Frequently Asked Questions
Can I submit an unsolicited grant proposal to CYSTINOSIS RESEARCH FOUNDATION?
No. CYSTINOSIS RESEARCH FOUNDATION does not accept unsolicited proposals. Funding is by invitation only.
Where does CYSTINOSIS RESEARCH FOUNDATION give?
CYSTINOSIS RESEARCH FOUNDATION primarily gives to organizations located in California, Illinois, and Massachusetts. These states represent the largest share of the foundation’s grantmaking by dollars awarded. Additional geographic details are available to registered users.
What size are CYSTINOSIS RESEARCH FOUNDATION’s grants?
The largest share of grants from CYSTINOSIS RESEARCH FOUNDATION fall in the $250 thousand to $500 thousand range. The median first-year grant is about $241 thousand. More detailed grant size data is available to registered users.
How many grants does CYSTINOSIS RESEARCH FOUNDATION make each year?
In 2025, CYSTINOSIS RESEARCH FOUNDATION awarded about 7 grants, totaling nearly $1.8 million. More detailed grant metrics are available to registered users.
Who did CYSTINOSIS RESEARCH FOUNDATION fund recently?
In 2025, CYSTINOSIS RESEARCH FOUNDATION awarded grants to about 10 grantees. Recent grantees include REGENTS OF THE UNIVERSITY OF CALIFORNIA AT SAN DIEGO, THE SCRIPPS RESEARCH INSTITUTE, and Massachusetts General Hospital. More detailed information on all recent recipients is available to registered users.
How do we apply to CYSTINOSIS RESEARCH FOUNDATION?
CYSTINOSIS RESEARCH FOUNDATION does not accept unsolicited proposals. Funding is by invitation only.