Overview

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Est.

2003

Latest Fiscal Year

Not available

Organization Type

Grantmaker

AI Summary

CYSTINOSIS RESEARCH FOUNDATION is a 501(c)(3) grantmaker with a 2025 grantmaking scale of $1.8M across 6 grantees. It does not accept unsolicited proposals and makes grants by invitation only; nonprofits can explore warm-introduction pathways via Impala's Funder Prospecting.

Mission Statement

Cystinosis Research Foundation's (CRF) mission is to support bench, clinical, and translational research to find better treatments and a cure for cystinosis. CRF is dedicated to funding research that will improve the quality of life for those with cystinosis and to find a cure for this devastating disease.
Total Funding Given
$1.8M
2025
Grantees funded
2025
N/A
Multi-year grantees (all time)
71%
Funding by Year
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Total No. of Grants
7
Median 1st year grant
$240.6K
Median 2nd year grant
$164.8K
D
David W Mossman
Board Member
G
Geoffrey Stack
Board Member
D
Donald L Solsby
Board Member
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  • 14 grantees
  • 36 board & team members
  • 12 historic 990s & financials
  • 6-year operating budget trend
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Frequently Asked Questions

Can I submit an unsolicited grant proposal to CYSTINOSIS RESEARCH FOUNDATION?
No. CYSTINOSIS RESEARCH FOUNDATION does not accept unsolicited proposals. Funding is by invitation only.
Where does CYSTINOSIS RESEARCH FOUNDATION give?
CYSTINOSIS RESEARCH FOUNDATION primarily gives to organizations located in California, Illinois, and Massachusetts. These states represent the largest share of the foundation’s grantmaking by dollars awarded. Additional geographic details are available to registered users.
What size are CYSTINOSIS RESEARCH FOUNDATION’s grants?
The largest share of grants from CYSTINOSIS RESEARCH FOUNDATION fall in the $250 thousand to $500 thousand range. The median first-year grant is about $241 thousand. More detailed grant size data is available to registered users.
How many grants does CYSTINOSIS RESEARCH FOUNDATION make each year?
In 2025, CYSTINOSIS RESEARCH FOUNDATION awarded about 7 grants, totaling nearly $1.8 million. More detailed grant metrics are available to registered users.
Who did CYSTINOSIS RESEARCH FOUNDATION fund recently?
In 2025, CYSTINOSIS RESEARCH FOUNDATION awarded grants to about 10 grantees. Recent grantees include REGENTS OF THE UNIVERSITY OF CALIFORNIA AT SAN DIEGO, THE SCRIPPS RESEARCH INSTITUTE, and Massachusetts General Hospital. More detailed information on all recent recipients is available to registered users.
How do we apply to CYSTINOSIS RESEARCH FOUNDATION?
CYSTINOSIS RESEARCH FOUNDATION does not accept unsolicited proposals. Funding is by invitation only.