Logo for "FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA"

FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA

FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA

Schaumburg, IL, US
501(c)3
EIN
36-3320440
Logo for "FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA"

FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA

Schaumburg, IL, US
501(c)3
EIN
36-3320440

Overview

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Est.

1984

Fiscal Year Start

Jul 1

Organization Type

Grantseeker
AI Summary
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Families of Spinal Muscular Atrophy, doing business as Cure SMA, is a nonprofit organization dedicated to driving research for treatments and a cure for spinal muscular atrophy (SMA), while also supporting and empowering individuals affected by the condition. With an operating budget of $11.5 million and total revenue of $15.2 million in 2025, the organization relies on a diverse range of funders, none of which contribute 50% or more of its revenue. For more information, visit their website at www.curesma.org.

Mission Statement

TO DRIVE RESEARCH FOR TREATMENTS AND A CURE FOR SMA, AND TO SUPPORT AND EMPOWER EVERYONE IMPACTED BY SMA TODAY.
Revenues

$15.2M

Expenses

$14M

Net Income:
+$1.2M
Assets

$10.6M

Liabilities

$3.2M

Net Assets:
+$7.4M
Operating Budget

$11.5M

Operating Budget by Year

Due Diligence

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Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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Total No. of Grants

51

Median grant size
$5.5K
Largest grant received
$565.2K
K
Kenneth Hobby
Board Member
R
Robert Graham
Board Member
R
Rob Lockwood
Board Member

Frequently Asked Questions

What is FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA’s budget?
In 2025, FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA reported an annual operating budget of around $11.5 million. More detailed financial information is available to registered users.
What causes does FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA support?
FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA supports work in Diseases and conditions.
Where does FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA operate?
FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA is headquartered in Schaumburg, IL.
Who funded FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA recently?
In 2025, FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA received grants from AMERICAN ONLINE GIVING FOUNDATION INC, CHARITIES AID FOUNDATION AMERICA, and ETTORE RICHARD DEROSA JR FOUNDATION. More information on this organization’s funders is available to registered users.
What is the largest grant FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA received in 2024?
The largest grant to FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA in 2024 exceeds $565 thousand.
Overview
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