FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA

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Families of Spinal Muscular Atrophy, doing business as Cure SMA, is a nonprofit organization dedicated to driving research for treatments and a cure for spinal muscular atrophy (SMA), while also supporting and empowering individuals affected by the condition. With an operating budget of $11.5 million and total revenue of $15.2 million in 2025, the organization relies on a diverse range of funders, none of which contribute 50% or more of its revenue. For more information, visit their website at www.curesma.org.
Mission Statement
TO DRIVE RESEARCH FOR TREATMENTS AND A CURE FOR SMA, AND TO SUPPORT AND EMPOWER EVERYONE IMPACTED BY SMA TODAY.
Cause Areas
1
Diseases and conditions
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Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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Frequently Asked Questions
What is FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA’s budget?
In 2025, FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA reported an annual operating budget of around $11.5 million. More detailed financial information is available to registered users.
What causes does FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA support?
FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA supports work in Diseases and conditions.
Where does FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA operate?
FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA is headquartered in Schaumburg, IL.
Who funded FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA recently?
In 2025, FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA received grants from AMERICAN ONLINE GIVING FOUNDATION INC, CHARITIES AID FOUNDATION AMERICA, and ETTORE RICHARD DEROSA JR FOUNDATION. More information on this organization’s funders is available to registered users.
What is the largest grant FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA received in 2024?
The largest grant to FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA in 2024 exceeds $565 thousand.
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