Overview

Sign up to

Est.

1984

Latest Fiscal Year

Not available

Organization Type

Grantseeker

AI Summary

FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA is a nonprofit focused on diseases and conditions, with a mission to drive research for treatments and a cure for SMA while supporting and empowering everyone impacted by the disease. In filing year 2025, it reported an operating budget of $11.5M and total revenue of $15.2M, with major support from LUKE 181 FOUNDATION, THE WEISMAN FAMILY FOUNDATION C/O ROBERT D WEISMAN, and THE TOBY AND NATALY RITTER FAMILY FOUNDATION.

Mission Statement

TO DRIVE RESEARCH FOR TREATMENTS AND A CURE FOR SMA, AND TO SUPPORT AND EMPOWER EVERYONE IMPACTED BY SMA TODAY.
Revenues
$15.2M
Expenses
$14M
Net Income:
+$1.2M
Assets
$10.6M
Liabilities
$3.2M
Net Assets:
+$7.4M
Operating Budget
$11.5M
Operating Budget by Year

Due Diligence

Are you a grantmaker?
Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
Go beyond basic verification
Instantly get 50+ financial health and governance metrics, including LUNA.
plg-image
plg-image
Go beyond basic verification
Instantly get 50+ financial health and governance metrics, including LUNA.
Total No. of Grants
51
Median grant size
$5.5K
Largest grant received
$565.2K
K
Kenneth Hobby
Board Member
R
Robert Graham
Board Member
R
Rob Lockwood
Board Member
Free account

There’s more to this organization

Create a free account to go deeper. No payment required.

  • 180 funders
  • 74 board & team members
  • 12 historic 990s & financials
  • 6-year operating budget trend
Free forever. Takes about a minute.

Is your org on Google Workspace or Microsoft 365? Sign up in seconds. Already have an account? Log in

By signing up, I agree to Impala’s Terms of Use and Privacy Policy.

Frequently Asked Questions

What is FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA’s budget?
In 2025, FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA reported an annual operating budget of around $11.5 million. More detailed financial information is available to registered users.
What causes does FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA support?
FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA supports work in Diseases and conditions.
Where does FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA operate?
FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA is headquartered in Schaumburg, IL.
Who funded FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA recently?
In 2025, FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA received grants from AMERICAN ONLINE GIVING FOUNDATION INC, CHARITIES AID FOUNDATION AMERICA, and ETTORE RICHARD DEROSA JR FOUNDATION. More information on this organization’s funders is available to registered users.
What is the largest grant FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA received in 2024?
The largest grant to FAMILIES OF SPINAL MUSCULAR ATROPHY DBA CURE SMA in 2024 exceeds $565 thousand.