NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS
AI Summary
The National Foundation for Ectodermal Dysplasias is a nonprofit focused on skin conditions and education, with a mission to empower and connect people touched by ectodermal dysplasias through education, support, and research. In filing year 2025, it reported a $1.5M operating budget and $1.6M in total revenue, with support from funders including LOUIS J AND JUNE E KAY FOUNDATION, AMERICAN FOUNDATION OF UTAH INC, and MOSS FAMILY FOUNDATION.
Mission Statement
EMPOWER AND CONNECT PEOPLE TOUCHED BY ECTODERMAL DYSPLASIAS VIA EDUCATION, SUPPORT, & RESEARCH.
Cause Areas
2
Education
Skin conditions
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Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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- 43 funders
- 30 board & team members
- 12 historic 990s & financials
- 6-year operating budget trend
Frequently Asked Questions
What is NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS’s budget?
In 2024, NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS reported an annual operating budget of around $1.2 million. More detailed financial information is available to registered users.
What causes does NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS support?
NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS supports work in Education and Skin conditions.
Where does NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS operate?
NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS is headquartered in FAIRVIEW HEIGHTS, IL.
Who funded NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS recently?
In 2025, NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS received grants from AMERICAN ONLINE GIVING FOUNDATION INC, HERBERT AND ELLEN LEVITT FOUNDATION INC C/O HERB LEVITT, and AMERICAN FOUNDATION OF UTAH INC. More information on this organization’s funders is available to registered users.
What is the largest grant NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS received in 2024?
The largest grant to NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS in 2024 exceeds $75 thousand.