NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS
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The National Foundation for Ectodermal Dysplasias (EIN: 37-1112496) is dedicated to empowering and connecting individuals affected by ectodermal dysplasias through education, support, and research. With an operating budget of $1.2 million for the 2024 filing year, the organization is supported by a diverse range of funders, with no single source contributing 50% or more of its revenue. For more information, visit their website at www.nfed.org.
Mission Statement
EMPOWER AND CONNECT PEOPLE TOUCHED BY ECTODERMAL DYSPLASIAS VIA EDUCATION, SUPPORT, & RESEARCH.
Cause Areas
2
Education
Skin conditions
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Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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Frequently Asked Questions
What is NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS’s budget?
In 2024, NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS reported an annual operating budget of around $1.2 million. More detailed financial information is available to registered users.
What causes does NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS support?
NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS supports work in Education and Skin conditions.
Where does NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS operate?
NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS is headquartered in FAIRVIEW HEIGHTS, IL.
Who funded NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS recently?
In 2025, NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS received grants from AMERICAN ONLINE GIVING FOUNDATION INC, AMERICAN FOUNDATION OF UTAH INC, and BILEK CHARITABLE FOUNDATION. More information on this organization’s funders is available to registered users.
What is the largest grant NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS received in 2024?
The largest grant to NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS in 2024 exceeds $75 thousand.