Overview

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Est.

1981

Latest Fiscal Year

Not available

Organization Type

Grantseeker

AI Summary

The NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS is dedicated to empowering and connecting individuals affected by ectodermal dysplasias through education, support, and research. With an operating budget of $1.2 million for the 2024 filing year, the organization relies on significant contributions from major funders, including FIDELITY INVESTMENTS CHARITABLE GIFT FUND and DONOR ADVISED CHARITABLE GIVING INC. The foundation does not depend on any single funder for more than 50% of its revenue, ensuring a diverse funding base for its mission. For more information, visit www.nfed.org.

Mission Statement

EMPOWER AND CONNECT PEOPLE TOUCHED BY ECTODERMAL DYSPLASIAS VIA EDUCATION, SUPPORT, & RESEARCH.
Revenues
$1.2M
Expenses
$1.2M
Net Income:
+$26.3K
Assets
$4.8M
Liabilities
$98.3K
Net Assets:
+$4.7M
Operating Budget
$1.2M
Operating Budget by Year

Due Diligence

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Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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Total No. of Grants
15
Median grant size
$12.4K
Largest grant received
$75K
M
Mary Fete
Board Member
K
Keith Throm
Board Member
K
Karl Nelsen
Board Member

Frequently Asked Questions

What is NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS’s budget?
In 2024, NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS reported an annual operating budget of around $1.2 million. More detailed financial information is available to registered users.
What causes does NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS support?
NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS supports work in Education and Skin conditions.
Where does NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS operate?
NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS is headquartered in FAIRVIEW HEIGHTS, IL.
Who funded NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS recently?
In 2025, NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS received grants from AMERICAN ONLINE GIVING FOUNDATION INC, HERBERT AND ELLEN LEVITT FOUNDATION INC C/O HERB LEVITT, and AMERICAN FOUNDATION OF UTAH INC. More information on this organization’s funders is available to registered users.
What is the largest grant NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS received in 2024?
The largest grant to NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS in 2024 exceeds $75 thousand.