NATIONAL DOWN SYNDROME CONGRESS
AI Summary
NATIONAL DOWN SYNDROME CONGRESS is a national nonprofit focused on Down syndrome, working to provide information, advocacy, and support across all aspects of life for individuals with Down syndrome. Based on reported fiscal year 2025 figures, it operates at a scale of about $1.8M in expenses with $2.1M in total revenue, and its reported funding includes support from LINLUNDH FOUNDATION C/O BAKERTILLY LLP, THE ANNA AND JOHN J SIE FOUNDATION, and MARINO FAMILY CHARITABLE FOUNDATION INC.
Mission Statement
THE MISSION OF THE NATIONAL DOWN SYNDROME CONGRESS IS TO PROVIDE INFORMATION, ADVOCACY, AND SUPPORT CONCERNING ALL ASPECTS OF LIFE FOR INDIVIDUALS WITH DOWN SYNDROME.
Cause Areas
1
Down syndrome
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Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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- 33 funders
- 69 board & team members
- 12 historic 990s & financials
- 6-year operating budget trend
Frequently Asked Questions
What is NATIONAL DOWN SYNDROME CONGRESS’s budget?
In 2024, NATIONAL DOWN SYNDROME CONGRESS reported an annual operating budget of around $1.6 million. More detailed financial information is available to registered users.
What causes does NATIONAL DOWN SYNDROME CONGRESS support?
NATIONAL DOWN SYNDROME CONGRESS supports work in Down syndrome.
Where does NATIONAL DOWN SYNDROME CONGRESS operate?
NATIONAL DOWN SYNDROME CONGRESS is headquartered in Cincinnati, OH.
Who funded NATIONAL DOWN SYNDROME CONGRESS recently?
In 2025, NATIONAL DOWN SYNDROME CONGRESS received grants from AMERICAN ONLINE GIVING FOUNDATION INC, SOUTHERN COMPANY GAS CHARITABLE FOUNDATION INC, and MARINO FAMILY CHARITABLE FOUNDATION INC. More information on this organization’s funders is available to registered users.
What is the largest grant NATIONAL DOWN SYNDROME CONGRESS received in 2024?
The largest grant to NATIONAL DOWN SYNDROME CONGRESS in 2024 exceeds $25 thousand.
What is NATIONAL DOWN SYNDROME CONGRESS’s reliance on government grants?
NATIONAL DOWN SYNDROME CONGRESS relied on government grants for less than 5% of their total revenue in 2024.