The Myositis Association

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The Myositis Association (EIN: 54-1660976) is a nonprofit organization dedicated to improving the lives of individuals affected by myositis, a rare group of musculoskeletal diseases that impact approximately 75,000 Americans. With an operating budget of $1.5 million and total revenue of $2 million for the 2024 filing year, TMA focuses on funding innovative research, raising awareness, and providing essential resources and support to the myositis community. The organization does not rely on a single funder for 50% or more of its revenue and operates through a diverse funding base. For more information, visit their website at www.Myositis.org.
Mission Statement
The mission of The Myositis Association, or TMA, is: to improve the lives of persons affected by myositis, fund innovative research, and increase myositis awareness and advocacy. TMA is the premier international organization providing important resources, education and support to those in the myositis community. This community consists of children, adults, and their families who live with the daunting and life-changing physical, psychological and emotional effects of myositis. Nationwide, an estimated 75,000 Americans are affected by this collection of rare diseases. Symptoms of myositis include, but are not limited to: muscle weakness pain fatigue tripping or falling trouble swallowing difficulty breathing and irritations of the skin, joints, and eyes. Myositis is often difficult to diagnose, because many physicians are unfamiliar with the disease and its symptoms. Also, as a rare disease, it can be difficult to enroll enough patients to conduct adequate research of new treatments, an
Cause Areas
2
Musculoskeletal diseases
Developmental disability services
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Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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Frequently Asked Questions
What is The Myositis Association’s budget?
In 2024, The Myositis Association reported an annual operating budget of around $1.5 million. More detailed financial information is available to registered users.
What causes does The Myositis Association support?
The Myositis Association supports work in Musculoskeletal diseases and Developmental disability services.
Where does The Myositis Association operate?
The Myositis Association is headquartered in Columbia, MD.
Who funded The Myositis Association recently?
In 2025, The Myositis Association received grants from AMERICAN ONLINE GIVING FOUNDATION INC, FIDELITY INVESTMENTS CHARITABLE GIFT FUND, and THE COMMUNITY FOUNDATION OF SARASOTA CO INC. More information on this organization’s funders is available to registered users.
What is the largest grant The Myositis Association received in 2024?
The largest grant to The Myositis Association in 2024 exceeds $30 thousand.
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