Overview

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Est.

1987

Latest Fiscal Year

Not available

Organization Type

Grantseeker

AI Summary

BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION is a nonprofit dedicated to supporting Batten families, funding and facilitating research, and advocating for treatments and a cure for Batten disease. In filing year 2024, it reported an operating budget of $831.5K and total revenue of $602K; its listed top funders include NOAH'S HOPE - HOPE 4 BRIDGET FOUNDATION, FORE BATTEN FOUNDATION, and THISBE AND NOAH SCOTT FOUNDATION INC.

Mission Statement

OUR LONG-TERM VISION IS A WORLD WITHOUT BATTEN DISEASE. OUR MISSION IS TO SUPPORT BATTEN FAMILIES, FUND AND FACILITATE RESEARCH AND ADVOCATE FOR TREATMENTS AND A CURE.
Revenues
$602K
Expenses
$967.3K
Net Income:
-$365.4K
Assets
$965.9K
Liabilities
$197.9K
Net Assets:
+$768K
Operating Budget
$831.5K
Operating Budget by Year

Due Diligence

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Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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Total No. of Grants
7
Median grant size
$8.9K
Largest grant received
$20.3K
A
Amy Fenton Parker
Board Member
K
Kate Haller
Board Member
D
Darlene Royalty
Board Member
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  • 22 funders
  • 36 board & team members
  • 11 historic 990s & financials
  • 6-year operating budget trend
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Frequently Asked Questions

What is BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION’s budget?
In 2024, BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION reported an annual operating budget of around $831 thousand. More detailed financial information is available to registered users.
Where does BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION operate?
BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION is headquartered in Gahanna, OH.
Who funded BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION recently?
In 2025, BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION received grants from AMERICAN ONLINE GIVING FOUNDATION INC, NOAH'S HOPE - HOPE 4 BRIDGET FOUNDATION, and MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC. More information on this organization’s funders is available to registered users.
What is the largest grant BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION received in 2024?
The largest grant to BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION in 2024 exceeds $20 thousand.