Overview

Sign up for

Est.

1987

Fiscal Year Start

Jan 1

Organization Type

Grantseeker

AI Summary

The Batten Disease Support & Research Association, with EIN 91-1397792, is dedicated to creating a world without Batten disease by supporting affected families, funding and facilitating research, and advocating for treatments and a cure. Operating with a budget of $831.5K and generating total revenue of $602K in 2024, the organization relies on a diverse range of funders, none of which contribute 50% or more of its revenue. While specific geographic operations are not detailed, the association's mission reflects a commitment to the broader community impacted by this rare neurological disorder.

Mission Statement

OUR LONG-TERM VISION IS A WORLD WITHOUT BATTEN DISEASE. OUR MISSION IS TO SUPPORT BATTEN FAMILIES, FUND AND FACILITATE RESEARCH AND ADVOCATE FOR TREATMENTS AND A CURE.
Revenues
$602K
Expenses
$967.3K
Net Income:
-$365.4K
Assets
$965.9K
Liabilities
$197.9K
Net Assets:
+$768K
Operating Budget
$831.5K
Operating Budget by Year

Due Diligence

Are you a grantmaker?
Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
Go beyond basic verification
Instantly get 50+ financial health and governance metrics, including LUNA.
plg-image
plg-image
Go beyond basic verification
Instantly get 50+ financial health and governance metrics, including LUNA.
Total No. of Grants
7
Median grant size
$8.9K
Largest grant received
$20.3K
A
Amy Fenton Parker
Board Member
K
Kate Haller
Board Member
D
Darlene Royalty
Board Member

Frequently Asked Questions

What is BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION’s budget?
In 2024, BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION reported an annual operating budget of around $831 thousand. More detailed financial information is available to registered users.
Where does BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION operate?
BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION is headquartered in Gahanna, OH.
Who funded BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION recently?
In 2025, BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION received grants from AMERICAN ONLINE GIVING FOUNDATION INC, NOAH'S HOPE - HOPE 4 BRIDGET FOUNDATION, and MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC. More information on this organization’s funders is available to registered users.
What is the largest grant BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION received in 2024?
The largest grant to BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION in 2024 exceeds $20 thousand.