AI Summary
The Batten Disease Support & Research Association, with EIN 91-1397792, is dedicated to creating a world without Batten disease by supporting affected families, funding and facilitating research, and advocating for treatments and a cure. Operating with a budget of $831.5K and generating total revenue of $602K in 2024, the organization relies on a diverse range of funders, none of which contribute 50% or more of its revenue. While specific geographic operations are not detailed, the association's mission reflects a commitment to the broader community impacted by this rare neurological disorder.
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Mission Statement
OUR LONG-TERM VISION IS A WORLD WITHOUT BATTEN DISEASE. OUR MISSION IS TO SUPPORT BATTEN FAMILIES, FUND AND FACILITATE RESEARCH AND ADVOCATE FOR TREATMENTS AND A CURE.
Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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Frequently Asked Questions
What is BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION’s budget?
In 2024, BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION reported an annual operating budget of around $831 thousand. More detailed financial information is available to registered users.
Where does BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION operate?
BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION is headquartered in Gahanna, OH.
Who funded BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION recently?
In 2025, BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION received grants from AMERICAN ONLINE GIVING FOUNDATION INC, NOAH'S HOPE - HOPE 4 BRIDGET FOUNDATION, and MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC. More information on this organization’s funders is available to registered users.
What is the largest grant BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION received in 2024?
The largest grant to BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION in 2024 exceeds $20 thousand.
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