ALAGILLE SYNDROME ALLIANCE

ALAGILLE SYNDROME ALLIANCE

Collierville, TN, US
501(c)3
EIN
93-1243619

ALAGILLE SYNDROME ALLIANCE

Collierville, TN, US
501(c)3
EIN
93-1243619

Overview

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Est.

1997

Fiscal Year Start

Jan 1

Organization Type

Grantseeker
AI Summary
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The Alagille Syndrome Alliance, identified by EIN 93-1243619, is a nonprofit organization dedicated to addressing genetic conditions, particularly Alagille Syndrome, and related health issues such as eye diseases and addiction services. With an operating budget of $460.6K and total revenue of $648K for the 2024 filing year, the organization mobilizes resources, facilitates connections, and advocates for a cure to enhance the lives of those affected by Alagille Syndrome. The organization does not rely on a single funder for 50% or more of its revenue and can be accessed online at alagille.org.

Mission Statement

MOBILIZE RESOURCES, FACILITATE CONNECTIONS, PROMOTING UNITY, AND ADVOCATING FOR A CURE TO INSPIRE, EMPOWER, AND ENRICH THE LIVES OF PEOPLE LIVING WITH ALAGILLE SYNDROME.
Revenues

$648K

Expenses

$512.6K

Net Income:
+$135.4K
Assets

$640.2K

Liabilities

$6K

Net Assets:
+$634.1K
Operating Budget

$460.6K

Operating Budget by Year

Due Diligence

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Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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Total No. of Grants

1

Median grant size
$10.3K
Largest grant received
$10.3K
R
Roberta Smith
Board Member
T
Todd Allen
Board Member
M
Mike Larosa
Board Member

Frequently Asked Questions

What is ALAGILLE SYNDROME ALLIANCE’s budget?
In 2024, ALAGILLE SYNDROME ALLIANCE reported an annual operating budget of around $461 thousand. More detailed financial information is available to registered users.
What causes does ALAGILLE SYNDROME ALLIANCE support?
ALAGILLE SYNDROME ALLIANCE supports work in Genetic conditions and birth defects, Addiction services, and Eye Diseases, Blindness & Vision Impairments Research.
Where does ALAGILLE SYNDROME ALLIANCE operate?
ALAGILLE SYNDROME ALLIANCE is headquartered in Collierville, TN.
Who funded ALAGILLE SYNDROME ALLIANCE recently?
In 2025, ALAGILLE SYNDROME ALLIANCE received grants from Boston Foundation, Inc, AMERICAN ONLINE GIVING FOUNDATION INC, and CHARITIES AID FOUNDATION AMERICA. More information on this organization’s funders is available to registered users.
What is the largest grant ALAGILLE SYNDROME ALLIANCE received in 2024?
The largest grant to ALAGILLE SYNDROME ALLIANCE in 2024 exceeds $10 thousand.
Overview
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