Overview

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Est.

1997

Fiscal Year Start

Jan 1

Organization Type

Grantseeker

AI Summary

The Alagille Syndrome Alliance is a nonprofit organization dedicated to mobilizing resources, facilitating connections, promoting unity, and advocating for a cure for Alagille Syndrome, a genetic condition impacting various health aspects including vision and liver function. With an operating budget of $460.6K and total revenue of $648K for the filing year 2024, the organization engages in research and support services related to genetic conditions, eye diseases, and addiction. The Alliance does not rely on a single funder for 50% or more of its revenue, ensuring a diverse funding base to support its mission. More information can be found on their website at alagille.org.

Mission Statement

MOBILIZE RESOURCES, FACILITATE CONNECTIONS, PROMOTING UNITY, AND ADVOCATING FOR A CURE TO INSPIRE, EMPOWER, AND ENRICH THE LIVES OF PEOPLE LIVING WITH ALAGILLE SYNDROME.
Revenues
$648K
Expenses
$512.6K
Net Income:
+$135.4K
Assets
$640.2K
Liabilities
$6K
Net Assets:
+$634.1K
Operating Budget
$460.6K
Operating Budget by Year

Due Diligence

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Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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Total No. of Grants
2
Median grant size
$25.7K
Largest grant received
$41K
R
Roberta Smith
Board Member
T
Todd Allen
Board Member
M
Mike Larosa
Board Member

Frequently Asked Questions

What is ALAGILLE SYNDROME ALLIANCE’s budget?
In 2024, ALAGILLE SYNDROME ALLIANCE reported an annual operating budget of around $461 thousand. More detailed financial information is available to registered users.
What causes does ALAGILLE SYNDROME ALLIANCE support?
ALAGILLE SYNDROME ALLIANCE supports work in Genetic conditions and birth defects, Addiction services, and Eye Diseases, Blindness & Vision Impairments Research.
Where does ALAGILLE SYNDROME ALLIANCE operate?
ALAGILLE SYNDROME ALLIANCE is headquartered in Collierville, TN.
Who funded ALAGILLE SYNDROME ALLIANCE recently?
In 2025, ALAGILLE SYNDROME ALLIANCE received grants from Boston Foundation, Inc, AMERICAN ONLINE GIVING FOUNDATION INC, and CHARITIES AID FOUNDATION AMERICA. More information on this organization’s funders is available to registered users.
What is the largest grant ALAGILLE SYNDROME ALLIANCE received in 2024?
The largest grant to ALAGILLE SYNDROME ALLIANCE in 2024 exceeds $41 thousand.