FAMILY AND SCIENTIFIC CONFERENCES CONDUCTED TO DISEMINATE INFORMATION ABOUT CCM TO THOSE AFFECTED AND THEIR FAMILIES.
Geographies
Not indicated
Dates
Oct 1, 2021 – Sep 30, 2022
Source
990
No causes provided
No populations provided
–
$444
Patient Registry for CCM Research
CREATION AND MAINTENANCE OF A PATIENT REGISTRY TO ADVOCATE, FACILITATE AND PARTICIPATE IN CCM RESEARCH IN THE PURSUIT OF A GREATER UNDERSTANDING OF THE DISEASE.
Geographies
Not indicated
Dates
Oct 1, 2021 – Sep 30, 2022
Source
990
No causes provided
No populations provided
–
$26.4K
Community Outreach and Awareness
PERFORMANCE OF COMMUNITY OUTREACH, PUBLICATION OF NEWSLETTER, AND MAINTENANCE OF WEBSITE TO INCREASE PUBLIC AWARENESS, PROVIDE SUPPORT, AND BUILD A BROAD BASE OF RESEARCH FUNDING RESOURCES.
