CHILDREN'S TUMOR FOUNDATION
Programs
Neurofibromatosis Research Support
RESEARCH - THE CHILDREN'S TUMOR FOUNDATION SUPPORTS NF RESEARCH THROUGH A RANGE OF FUNDING MECHANISMS. OUR INVESTMENTS IN RESEARCH ARE THREE-FOLD: 1) TO ATTRACT TALENTED INVESTIGATORS TO NF RESEARCH; 2) TO SUPPORT INNOVATIVE RESEARCH; AND 3) TO FOSTER COLLABORATIVE EFFORTS TO FIND TREATMENTS AND CURES FOR NEUROFIBROMATOSIS. THE FOUNDATION HAS BEEN AT THE FOREFRONT OF KEY ADVANCES IN NF RESEARCH INCLUDING FUNDING THE LABORATORIES THAT DISCOVERED THE NF1 AND NF2 GENES, SUPPORTING GROUNDBREAKING CLINICAL TRIALS, AND ESTABLISHING THE FIRST NATIONWIDE NF CLINIC NETWORK AND NF PATIENT REGISTRY. THE FOUNDATION SPONSORS AN ANNUAL SCIENTIFIC CONFERENCE WHICH BRINGS RESEARCHERS TOGETHER TO DISCUSS THE LATEST SCIENTIFIC DEVELOPMENTS RELATED TO NF. ADDITONALLY, OUR PROGRAMS ARE DESIGNED TO INTEGRATE WITH AND SUPPORT LARGER FEDERALLY FUNDED PROJECTS THROUGH THE CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAM (CDMRP) AND NIH.GeographiesNot indicatedDatesJan 1, 2023 – Dec 31, 2023Source990No causes providedNo populations provided–$10.1MPublic Education and Patient Support
PUBLIC EDUCATION AND PATIENT SUPPORT - THE CHILDREN'S TUMOR FOUNDATION ENGAGES IN PUBLIC EDUCATION THROUGH ITS WEBSITE, QUARTERLY NEWSLETTERS, MEDIA COVERAGE, AND ITS NATIONAL PROGRAMS. THROUGH OUR NF ENDURANCE AND NF WALK PROGRAMS, THE FOUNDATION HIGHLIGHTS NF HEROES AND THEIR TRIUMPHANT SPIRITS. THE FOUNDATION ALSO SPONSORS BENEFIT DINNERS AND REGIONAL AND LOCAL EVENTS TO PROMOTE AWARENESS. THE CHILDREN'S TUMOR FOUNDATION IS DEDICATED TO SUPPORTING PATIENTS WITH NF AS WELL AS THEIR FAMILY MEMBERS. THROUGH THE NF CLINIC NETWORK AND THE ANNUAL NF FORUM, THE FOUNDATION BRINGS RESEARCHERS, PROVIDERS, AND FAMILIES TOGETHER TO DISCUSS DEVELOPMENTS IN TREATMENTS.REGIONAL SYMPOSIA ARE ALSO HELD THROUGHOUT THE YEAR.GeographiesNot indicatedDatesJan 1, 2023 – Dec 31, 2023Source990No causes providedNo populations provided–$5.7M
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