NATIONAL DOWN SYNDROME SOCIETY
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The National Down Syndrome Society (EIN: 13-2992567) is dedicated to empowering individuals with Down syndrome and their families through policy advocacy, resource provision, community engagement, and public perception change. With an operating budget of $5 million and total revenue of $4 million for the 2024 filing year, the organization does not rely on any single funder for 50% or more of its revenue. More information can be found on their website at www.ndss.org.
Mission Statement
The National Down Syndrome Society empowers individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities, and shifting public perceptions.
Cause Areas
1
Down syndrome
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Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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Frequently Asked Questions
What is NATIONAL DOWN SYNDROME SOCIETY’s budget?
In 2024, NATIONAL DOWN SYNDROME SOCIETY reported an annual operating budget of around $5 million. More detailed financial information is available to registered users.
What causes does NATIONAL DOWN SYNDROME SOCIETY support?
NATIONAL DOWN SYNDROME SOCIETY supports work in Down syndrome.
Where does NATIONAL DOWN SYNDROME SOCIETY operate?
NATIONAL DOWN SYNDROME SOCIETY is headquartered in WASHINGTON, DC.
Who funded NATIONAL DOWN SYNDROME SOCIETY recently?
In 2025, NATIONAL DOWN SYNDROME SOCIETY received grants from WITH FOUNDATION, AMERICAN ONLINE GIVING FOUNDATION INC, and CHARITIES AID FOUNDATION AMERICA. More information on this organization’s funders is available to registered users.
What is the largest grant NATIONAL DOWN SYNDROME SOCIETY received in 2024?
The largest grant to NATIONAL DOWN SYNDROME SOCIETY in 2024 exceeds $113 thousand.