Overview

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Est.

1979

Latest Fiscal Year

Not available

Organization Type

Grantseeker

AI Summary

The National Down Syndrome Society is a nonprofit focused on Down syndrome, with a mission to empower individuals with Down syndrome and their families by driving policy change, providing resources, engaging local communities, and shifting public perceptions. In filing year 2025, it reported an operating budget of $5.5M and total revenue of $4.7M, with major support from ORANGE COUNTY COMMUNITY FOUNDATION, The Taishoff Family Foundation Inc, and WITH FOUNDATION.

Mission Statement

The National Down Syndrome Society empowers individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities, and shifting public perceptions.
Revenues
$4M
Expenses
$5.3M
Net Income:
-$1.3M
Assets
$13M
Liabilities
$1.1M
Net Assets:
+$11.9M
Operating Budget
$5M
Operating Budget by Year

Due Diligence

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Charity Verification Snapshot
IRS EO Business Master File Status
Listed as tax-exempt
IRS Pub 78 Status
Eligible for tax-deductible gifts
IRS Revocation Status
Not in Automatic Revocation of Exemption List
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Total No. of Grants
37
Median grant size
$5K
Largest grant received
$112.8K
K
Kandi Pickard
Board Member
J
John Cronin
Board Member
E
Elizabeth F Goodwin
Board Member
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  • 161 funders
  • 70 board & team members
  • 11 historic 990s & financials
  • 6-year operating budget trend
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Frequently Asked Questions

What is NATIONAL DOWN SYNDROME SOCIETY’s budget?
In 2024, NATIONAL DOWN SYNDROME SOCIETY reported an annual operating budget of around $5 million. More detailed financial information is available to registered users.
What causes does NATIONAL DOWN SYNDROME SOCIETY support?
NATIONAL DOWN SYNDROME SOCIETY supports work in Down syndrome.
Where does NATIONAL DOWN SYNDROME SOCIETY operate?
NATIONAL DOWN SYNDROME SOCIETY is headquartered in WASHINGTON, DC.
Who funded NATIONAL DOWN SYNDROME SOCIETY recently?
In 2025, NATIONAL DOWN SYNDROME SOCIETY received grants from WITH FOUNDATION, AMERICAN ONLINE GIVING FOUNDATION INC, and CHARITIES AID FOUNDATION AMERICA. More information on this organization’s funders is available to registered users.
What is the largest grant NATIONAL DOWN SYNDROME SOCIETY received in 2024?
The largest grant to NATIONAL DOWN SYNDROME SOCIETY in 2024 exceeds $113 thousand.