Overview

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Est.

1983

Fiscal Year Start

Jan 1

Organization Type

Grantmaker

AI Summary

The National Organization for Rare Disorders Inc is a 501(c)(3) grantmaking organization that focuses on supporting initiatives related to rare diseases. With a total of $40,000 in grants paid to 46 grantees in 2024, this funder operates on a relationship-based engagement model and does not accept unsolicited proposals, making grants by invitation only. Nonprofits interested in applying can explore warm-introduction pathways through Impala's Funder Prospecting.

Mission Statement

NORD STRIVES TO IMPROVE THE HEALTH AND WELL-BEING OF PEOPLE WITH RARE DISEASES BY DRIVING ADVANCES IN CARE, RESEARCH, AND POLICY.
Total Funding Given
$40K
2024
Grantees funded
46
Multi-year grantees
43%
Funding by Year
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Evaluate your own portfolio
Understand the health of your own grantees and uncover signs of risk.
Total No. of Grants
2
Median 1st year grant
$25K
Median 2nd year grant
$25K
P
Peter Saltonstall
Board Member
J
Jim Palma
Board Member
M
Mark Skinner
Board Member

Frequently Asked Questions

Can I submit an unsolicited grant proposal to NATIONAL ORGANIZATION FOR RARE DISORDERS INC?
No. NATIONAL ORGANIZATION FOR RARE DISORDERS INC does not accept unsolicited proposals. Funding is by invitation only.
Where does NATIONAL ORGANIZATION FOR RARE DISORDERS INC give?
NATIONAL ORGANIZATION FOR RARE DISORDERS INC primarily gives to organizations located in Pennsylvania, Illinois, and California. These states represent the largest share of the foundation’s grantmaking by dollars awarded. Additional geographic details are available to registered users.
What size are NATIONAL ORGANIZATION FOR RARE DISORDERS INC’s grants?
The largest share of grants from NATIONAL ORGANIZATION FOR RARE DISORDERS INC fall in the $25 thousand to $50 thousand range. The median first-year grant is about $25 thousand. More detailed grant size data is available to registered users.
How many grants does NATIONAL ORGANIZATION FOR RARE DISORDERS INC make each year?
In 2024, NATIONAL ORGANIZATION FOR RARE DISORDERS INC awarded about 2 grants, totaling nearly $40 thousand. More detailed grant metrics are available to registered users.
Who did NATIONAL ORGANIZATION FOR RARE DISORDERS INC fund recently?
In 2024, NATIONAL ORGANIZATION FOR RARE DISORDERS INC awarded grants to about 50 grantees. Recent grantees include Baylor College of Medicine, REGENTS OF THE UNIVERSITY OF COLORADO, and UNIVERSITY OF CALIFORNIA SAN FRANCISCO. More detailed information on all recent recipients is available to registered users.
How do we apply to NATIONAL ORGANIZATION FOR RARE DISORDERS INC?
NATIONAL ORGANIZATION FOR RARE DISORDERS INC does not accept unsolicited proposals. Funding is by invitation only.