NATIONAL ORGANIZATION FOR RARE DISORDERS INC
AI Summary
NATIONAL ORGANIZATION FOR RARE DISORDERS INC is a 501(c)(3) grantmaker with a website at WWW.RAREDISEASES.ORG that reported $101.6K in total grants paid across 4 grantees in filing year 2025. It does not accept unsolicited proposals and makes grants by invitation only; nonprofits can explore warm-introduction pathways via Impala's Funder Prospecting.
Mission Statement
NORD STRIVES TO IMPROVE THE HEALTH AND WELL-BEING OF PEOPLE WITH RARE DISEASES BY DRIVING ADVANCES IN CARE, RESEARCH, AND POLICY.
Cause Areas
1
Education
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Grantee
Total Funding
Funding Share
Baylor College of Medicine
Houston, TX
$242.5K
9%
REGENTS OF THE UNIVERSITY OF COLORADO
DENVER, CO
$238K
9%
UNIVERSITY OF CALIFORNIA SAN FRANCISCO
SAN FRANCISCO, CA
$170K
6%
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- 46 grantees
- 76 board & team members
- 13 historic 990s & financials
- 6-year operating budget trend
Frequently Asked Questions
Can I submit an unsolicited grant proposal to NATIONAL ORGANIZATION FOR RARE DISORDERS INC?
No. NATIONAL ORGANIZATION FOR RARE DISORDERS INC does not accept unsolicited proposals. Funding is by invitation only.
Where does NATIONAL ORGANIZATION FOR RARE DISORDERS INC give?
NATIONAL ORGANIZATION FOR RARE DISORDERS INC primarily gives to organizations located in Pennsylvania, Illinois, and California. These states represent the largest share of the foundation’s grantmaking by dollars awarded. Additional geographic details are available to registered users.
What size are NATIONAL ORGANIZATION FOR RARE DISORDERS INC’s grants?
The largest share of grants from NATIONAL ORGANIZATION FOR RARE DISORDERS INC fall in the $25 thousand to $50 thousand range. The median first-year grant is about $25 thousand. More detailed grant size data is available to registered users.
How many grants does NATIONAL ORGANIZATION FOR RARE DISORDERS INC make each year?
In 2024, NATIONAL ORGANIZATION FOR RARE DISORDERS INC awarded about 2 grants, totaling nearly $40 thousand. More detailed grant metrics are available to registered users.
Who did NATIONAL ORGANIZATION FOR RARE DISORDERS INC fund recently?
In 2024, NATIONAL ORGANIZATION FOR RARE DISORDERS INC awarded grants to about 50 grantees. Recent grantees include Baylor College of Medicine, REGENTS OF THE UNIVERSITY OF COLORADO, and UNIVERSITY OF CALIFORNIA SAN FRANCISCO. More detailed information on all recent recipients is available to registered users.
How do we apply to NATIONAL ORGANIZATION FOR RARE DISORDERS INC?
NATIONAL ORGANIZATION FOR RARE DISORDERS INC does not accept unsolicited proposals. Funding is by invitation only.