WORLD FEDERATION OF HEMOPHILIA USA
Programs
WFH Humanitarian Aid Program
WFH Humanitarian Aid program The WFH Humanitarian Aid Program improves the lack of access to care and treatment by providing much-needed support to national member organizations NMOs hemophilia treatment centres HTCs and healthcare practitioners HCPs in emerging countries. This support comes in the form of education training and donated factor and non-factor replacement therapy. The objective of the program is to make it possible for people with inherited bleeding disorders to reliably access safe and consistent treatment and care regardless of their type of bleeding disorder gender or location. WFH USA provides tens of thousands of people living with hemophilia access to care and allows the introduction of prophylaxis and elective surgeries in more than 60 countries around the world. The Program promotes identification and diagnosis incentivizes governments to invest in bleeding disorders care and demonstrates the positive impact of investment in treatment. In accordance with the Collaboration Agreement between WFH USA and the WFH WFH USA is exclusively responsible for all solicitations of donors and potential donors of in-kind contributions of clotting factor and other pharmaceutical products for use in the WFH Humanitarian Aid Program and all monetary donations to support the WFH Humanitarian Aid Program. In accordance with the Collaboration agreement between WFH USA and the WFH WFH USA periodically grants contributions received to support the WFH Humanitarian Aid programs to the WFH as needed to carry out the WFH's responsibilities with respect to the WFH Humanitarian Aid ProgramGeographiesNot indicatedDatesJan 1, 2022 – Dec 31, 2022Source990No causes providedNo populations provided–$683.3MWFH Training and Education Program
WFH TRAINING AND EDUCATION PROGRAM The WFH Training and Education program provides the global bleeding disorders community with the information and tools required to improve access to diagnosis and ensure reliable access to safe treatment and care. Training and education may be delivered through healthcare development programs in-person and virtual workshops and educational events and the development and distribution of educational resources available in printed and electronic format. In accordance with the Collaboration agreement between WFH USA and the WFH WFH USA periodically grants contributions received to support the WFH Training and Education programs to the WFH as needed to carry out the WFH's responsibilities with respect to the WFH Training and Education Program.GeographiesNot indicatedDatesJan 1, 2022 – Dec 31, 2022Source990No causes providedNo populations provided–$575KWFH Research Program
WFH RESEARCH PROGRAM The WFH Research Program works to enhance data collection and research activities around the world to build the evidence base for the optimal management of inherited bleeding disorders. It fills a unique need within the global community and has great potential to add value to the existing evidence base. Part of the Research Program the World Bleeding Disorders Registry WBDR is a web-based data entry system that provides a platform for a network of hemophilia treatment centers HTCs around the world to collect uniform and standardized data and guide clinical practice. In accordance with the Collaboration agreement between WFH USA and the WFH WFH USA periodically grants contributions received to support the WFH Research Program to the WFH as needed to carry out the WFH's responsibilities with respect to the WFH Research Program.GeographiesNot indicatedDatesJan 1, 2022 – Dec 31, 2022Source990No causes providedNo populations provided–$230K
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