Overview

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Est.

2006

Latest Fiscal Year

Not available

Organization Type

Grantmaker

AI Summary

MYOTONIC DYSTROPHY FOUNDATION INC is a 501(c)(3) grantmaker that paid $847.6K across 8 grantees in filing year 2024. It does not accept unsolicited proposals and makes grants by invitation only; nonprofits can explore warm-introduction pathways via Impala's Funder Prospecting.

Mission Statement

To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research.
Total Funding Given
$847.6K
2024
Grantees funded
2024
N/A
Multi-year grantees (all time)
50%
Funding by Year
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Total No. of Grants
9
Median 1st year grant
$70K
Median 2nd year grant
$81.4K
Top 3 Grants
Matched grants only
Grantee
Grant Size
T
Tanya Stevenson
Board Member
E
Elizabeth Florence
Board Member
C
Charles Thornton
Board Member
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  • 20 grantees
  • 31 board & team members
  • 12 historic 990s & financials
  • 6-year operating budget trend
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Frequently Asked Questions

Can I submit an unsolicited grant proposal to MYOTONIC DYSTROPHY FOUNDATION INC?
No. MYOTONIC DYSTROPHY FOUNDATION INC does not accept unsolicited proposals. Funding is by invitation only.
Where does MYOTONIC DYSTROPHY FOUNDATION INC give?
MYOTONIC DYSTROPHY FOUNDATION INC primarily gives to organizations located in New York, Florida, and Virginia. These states represent the largest share of the foundation’s grantmaking by dollars awarded. Additional geographic details are available to registered users.
What size are MYOTONIC DYSTROPHY FOUNDATION INC’s grants?
The largest share of grants from MYOTONIC DYSTROPHY FOUNDATION INC fall in the $100 thousand to $250 thousand range. The median first-year grant is about $70 thousand. More detailed grant size data is available to registered users.
How many grants does MYOTONIC DYSTROPHY FOUNDATION INC make each year?
In 2024, MYOTONIC DYSTROPHY FOUNDATION INC awarded about 9 grants, totaling nearly $848 thousand. More detailed grant metrics are available to registered users.
Who did MYOTONIC DYSTROPHY FOUNDATION INC fund recently?
In 2024, MYOTONIC DYSTROPHY FOUNDATION INC awarded grants to about 20 grantees. Recent grantees include UNIVERSITY OF ROCHESTER, THE SCRIPPS RESEARCH INSTITUTE, and THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY. More detailed information on all recent recipients is available to registered users.
How do we apply to MYOTONIC DYSTROPHY FOUNDATION INC?
MYOTONIC DYSTROPHY FOUNDATION INC does not accept unsolicited proposals. Funding is by invitation only.