MYOTONIC DYSTROPHY FOUNDATION INC
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The Myotonic Dystrophy Foundation Inc is a 501(c)3 organization that focuses its grantmaking efforts primarily in New York, Florida, and Virginia, having distributed a total of $847.6K across 20 grantees in 2024. This foundation operates on a relationship-based, invitation-only model and does not accept unsolicited proposals. Nonprofits interested in engaging with the foundation may explore warm-introduction pathways through Impala's Funder Prospecting.
Mission Statement
To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research.
Cause Areas
3
Genetic conditions and birth defects
Film and video
Diseases and conditions
Explore this org's ecosystem
See top causes for this funder's grantees, who else funds them, and their grants.
Explore this org's ecosystem
See top causes for this funder's grantees, who else funds them, and their grants.
Grantee
Total Funding
Funding Share
UNIVERSITY OF ROCHESTER
$542.8K
12%
THE SCRIPPS RESEARCH INSTITUTE
$407.5K
9%
THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY
$315K
7%
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Total No. of Grants
9
Median 1st year grant
$70K
Median 2nd year grant
$81.4K
Top 3 Grants
Matched grants only
Grantee
Grant Size
Frequently Asked Questions
Can I submit an unsolicited grant proposal to MYOTONIC DYSTROPHY FOUNDATION INC?
No. MYOTONIC DYSTROPHY FOUNDATION INC does not accept unsolicited proposals. Funding is by invitation only.
Where does MYOTONIC DYSTROPHY FOUNDATION INC give?
MYOTONIC DYSTROPHY FOUNDATION INC primarily gives to organizations located in New York, Florida, and Virginia. These states represent the largest share of the foundation’s grantmaking by dollars awarded. Additional geographic details are available to registered users.
What size are MYOTONIC DYSTROPHY FOUNDATION INC’s grants?
The largest share of grants from MYOTONIC DYSTROPHY FOUNDATION INC fall in the $100 thousand to $250 thousand range. The median first-year grant is about $70 thousand. More detailed grant size data is available to registered users.
How many grants does MYOTONIC DYSTROPHY FOUNDATION INC make each year?
In 2024, MYOTONIC DYSTROPHY FOUNDATION INC awarded about 9 grants, totaling nearly $848 thousand. More detailed grant metrics are available to registered users.
Who did MYOTONIC DYSTROPHY FOUNDATION INC fund recently?
In 2024, MYOTONIC DYSTROPHY FOUNDATION INC awarded grants to about 20 grantees. Recent grantees include UNIVERSITY OF ROCHESTER, THE SCRIPPS RESEARCH INSTITUTE, and THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY. More detailed information on all recent recipients is available to registered users.
How do we apply to MYOTONIC DYSTROPHY FOUNDATION INC?
MYOTONIC DYSTROPHY FOUNDATION INC does not accept unsolicited proposals. Funding is by invitation only.