WE ARE A VOLUNTEER NON-PROFIT ORGANIZATION CONSISTING OF PARENTS, RELATIVES,FRIENDS AND PROFESSIONALS WHO ARE INVOLVED WITH FIGHING CYSTINOSIS. WE RAISE AWARENESS AND MONEY FOR MEDICAL RESEARCH FOR THIS RARE DISEASE,CYSTINOSIS. WE ARE IN PARTNERSHIP WITH THE CYSTINOSIS RESEARCH FOUNDATION, AND DIRECT ALL NET PROCEEDS TO CRF FOR CLINICAL TRIALS AND RESEARCH.
